Am I expecting too much?

JustWeave · 01-11-2009, 04:38 PM

I was diagnosed as gluten sensitive in Feb. 2007. I went gluten free March of 2007 and got my life back. Before I was diagnosed I had bathroom issues, fatigue, and cog fog. This was mild to severe and I never knew what the next day would bring. I also had pain, tingling, numbness, and swelling all of which were on the right side only of my body most of the time. This too varied from mild to severe.

When I went to my dr. after being GF for one full year I commented on some lingering symptoms. He told me it takes two years to heal completely so give my body more time. While everything is much, much better than it was two years ago I think most things are slightly worse than they were say six months ago. It seems like I was virtually symptom free then and now I'd say some things are mild to moderate. Bathroom issues remain a constant non issue but the rest seems slightly worse.

The only food sensitivity I know I have is gluten. I don't knowingly cheat on my diet. The possible consequences just aren't worth it to me. I also have Raynaud's which seems to like people who have problems with gluten.

So here are my questions- Could I have some permanent neurological/ rheumatological damage? Could the increased intensity by a sign of another health issue like lupus (just using that as an example) heading my way? What else could be going on?

I go back to my dr. in April. If things don't get better before then I plan to start a symptom log about a month before my appointment. I know he wants to do some lab work at that time so I don't see a need to call now with my concerns. Or should I?

Any opinions will be greatly appreciated. I thought once I healed my symptoms would vanish completely. Maybe I am expecting too much.

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