FAQ/Help |
Calendar |
Search |
Today's Posts |
09-12-2006, 01:02 PM | #1 | ||
|
|||
Junior Member
|
My daughter had an upper EGD and I am awaiting the complete results, however the nurse told me that her lactase and sugar levels were normal. She also said that because of these results she probably does not have celiac. Is this correct? What exactly does lactase have to do with celiac?
|
||
Reply With Quote |
09-12-2006, 05:13 PM | #2 | ||
|
|||
Junior Member
|
Quote:
Grace |
||
Reply With Quote |
09-12-2006, 06:41 PM | #3 | |||
|
||||
Member
|
Hi Diha,
Lactase is an enzyme that the tips of the villi produce. If the villi are damaged, they can not produce lactase. If there's no lactase, it can't break down lactose [sugar component in dairy]. This is the reason many celiacs can not do dairy. Many times after they have healed, they can tolerate some about of dairy. Interesting about testing the lactase levels for CD. That's not something I have ever heard of. http://www.medicinenet.com/lactose_i...ce/article.htm How old is your DD? Blood tests can be unreliable in kids under 2 years old.
__________________
Al “We cannot all do great things, but we can do small things with great love.” ~Mother Teresa Last edited by aklap; 09-12-2006 at 06:45 PM. |
|||
Reply With Quote |
09-12-2006, 09:25 PM | #4 | ||
|
|||
Member
|
Many people who have lactose intolerance have CD - in this study about 25%. Not everyone with lactose intolerance have CD and not everyone with CD have lactose intolerance. As Al said, if the tips of the villi are damaged enough, there will be a deficiency in lactase. Hopefully you daughter will be diagnosed before this much damage is done. I hope that multiple biopsies were taken and that the pathologist knows to look for subtle signs of CD.
Is there CD in the family? Were your DD's blood tests positive? Which tests were run? Hope the EGD went smoothly for your daughter. How is she feeling? Anne |
||
Reply With Quote |
09-13-2006, 10:51 AM | #5 | ||
|
|||
Junior Member
|
My daughter is 5 and weighs 33 lbs. She has grown taller within the past year but has not gained an ounce. She had 9 root canals at 2 yrs old, and was diagnosed with Lichen sclerosis at 4 yrs old. Not to mention her stomach issues. She has had the bloodwork done which was negative. She had the genetic test which shoed she has the DQ2 gene. My sister and niece have celiac (gold standard), my nephew also has celiac (enterolab), and my mother and brother are on a gf diet and feel much better. Her experience with the EGD was not good. The nurse yelled at her for and made her cry. They took her to the room before she was asleep (which she remember) and they let her scream for 10 minutes in the recovery room before they came and got me. She was scared.
|
||
Reply With Quote |
09-13-2006, 07:49 PM | #6 | ||
|
|||
Member
|
I am so sorry to hear that the EGD was a nightmare. ((((((HUGS)))))) to you both.
Are you going to start a GF diet to see if she improves. Anne |
||
Reply With Quote |
09-13-2006, 08:00 PM | #7 | ||
|
|||
Senior Member (jccglutenfree)
|
I'm so sorry to hear she had a bad experience.
Let us know when the results are in. Cara
__________________
. |
||
Reply With Quote |
09-13-2006, 08:54 PM | #8 | ||
|
|||
Member
|
Hospitals can make me SO angry!!... especially when children are involved!
Hopefully she is young enough to forget about it so that it doesn't affect her in the long term. I'm with the others that say, get the testing done... then try her on the diet no matter what the results are. It's not a harmful diet in any way that I've ever heard of or known about. We've been gf for 4 years along with other foods. Recently we've given up all dairy as well. The longer we're away from it, the stranger it seems that people consume so much of it every day. We also only do refined sugar about once a week (if that) and steer clear of soy and some other things that I can't even think of now (oatmeal, etc.). Both of my boys are still reacting to things I can't seem to isolate but at least they're growing well and not 'acting out' like they were when we were consuming gluten.
__________________
Kind regards, KimS formerly pakisa 100 at BT 01/02/2002 Even Small Amounts of Gluten Cause Relapse in Children With Celiac Disease (Docguide.com) 12/20/2002 The symptomatic and histologic response to a gf diet with borderline enteropathy (Docguide.com) |
||
Reply With Quote |
Reply |
|
|