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09-14-2006, 08:46 AM | #1 | ||
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Junior Member
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I shall make it brief. Son who was diagnosed by Dr Fine last year has severe anemia. After a endoscopy last week they found "helicobacter pylori" but no gluten mal absorbtion. Basically, they think we are insane and he could eat gluten. France is behind the times.
Isn't there a direct relationship between CD and this????? |
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09-14-2006, 09:45 AM | #2 | ||
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Senior Member (jccglutenfree)
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We lost so much in the old forum... we had many threads on h. pylori. It is one of the pages I need to recreate in The Gluten File and haven't done yet.
WorriedMom's son also had h. pylori that needed to be erradicated. I wish I knew if my daughter did, and it is one of the many things I feel went untested. H. pylori is a likely trigger for gluten sensitivity developing because it damages the gut lining... leaky gut from any cause results in problems. These things often go together. Chicken and egg. Is the food sensitivity primary or secondary? h. pylori cause is, or does h.pylori get its foot in the gut due to already damaged gut and compromised immune system?? Given your family history, I can understand why you wouldn't want to jump back to gluten~ but, the h. pylori needs to go. I'm going to go look for some of old pages, sometimes we can find cached copies and rescue our old data. Well, I found this one on h. pylori: http://64.233.167.104/search?q=cache...s&ct=clnk&cd=2 H.Pylori is also associated with lymphocytic gastritis and colitis, but so is gluten sensitivity. The diagnostics can be confusing. http://64.233.167.104/search?q=cache...s&ct=clnk&cd=1 Thanks for the nudge to recover these. They'll soon be included in The Gluten File. Nobody can say you can't have both h. phyori and celiac disease, but without a gold star diagnosis, nobody is going to call it celiac disease. It is good that the h. pylori was found! Finding other co-existing conditions is one of the pro's of having a biopsy done. This study shows a significant association between H. pylori infection and iron-deficiency anaemia in patients with coeliac disease. Link between Helicobacter pylori infection and iron-deficiency anaemia in patients with coeliac disease. PMID: 11761018 Cara
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. Last edited by jccgf; 09-14-2006 at 10:07 AM. |
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09-14-2006, 10:10 PM | #3 | ||
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Member
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Hi Hanna, sorry to hear that your son's doctors don't understand gluten sensitivity - frustrating. Did they even take biopsies of the small intestine. I have a friend who had an endoscopy and when gastritis and h. pylori were found, that was the end of the search - no biopsies other than of the stomach.
Here is a new article. Is it saying that 30 of the 80 people with CD had H.pylori? That is a large percentage. http://www.ncbi.nlm.nih.gov/entrez/q...play&DB=pubmed Quote:
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09-20-2006, 06:12 AM | #4 | ||
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Junior Member
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They wouldn't find gluten mal-adsorbtion if he's GF ..... Give me a call if you want a GP recommendation or two.....heck give me a call anyway but Im outrageously busy.. burned down my kitchen yesterday and currently repainting and plastering.... I hear a lots and lots of good things about doc Saltzman in the 9th... but I also hear you need a recommendation to get in.... I can find you one though no prob. and you are welcome to try my wonderful GI in the 5th.... she's an absolute angel and takes anyone (when I quit my job she gave me a lecture on how she would treat me for free and I should never not go because of the cost) .... |
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09-20-2006, 08:38 AM | #5 | ||
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Senior Member (jccglutenfree)
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OMgoodness, you really had a fire in your kitchen???? I'm so sorry to hear that, and hope that nobody was hurt. Good luck in the remodel. Was the damage extensive? Cara
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09-20-2006, 09:19 AM | #6 | ||
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Junior Member
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Nah... time wise yes I need to do a lot of cleaning.... for smoke damage (mostly done) and replastering where the ceiling peeled off (90% finished) and repaint the whole lot (oh and get this paint off my keyboard )
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09-20-2006, 10:27 AM | #7 | ||
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Glad you're okay Steve.
I was just reading, yesterday, how low iodine can be linked to high h.p. Maybe that could help some in your direction of research... as a matter of fact I'll start a new food study thread on it.
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Kind regards, KimS formerly pakisa 100 at BT 01/02/2002 Even Small Amounts of Gluten Cause Relapse in Children With Celiac Disease (Docguide.com) 12/20/2002 The symptomatic and histologic response to a gf diet with borderline enteropathy (Docguide.com) |
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09-21-2006, 09:16 AM | #8 | ||
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Junior Member
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They found it in his biopsy and not in his blood???? 2ndly, we eat alot of fish?????? Thanks
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