I have MS and Celiac's.....
I started on the GF diet about 2 months ago ..........
I have had many mouth sores since I have started it.

Is this a normal thing due to all the changes?

Is there any suggestions on what I could do for them?
It is making it hard for me to eat.

I would be thankful for any advice.........

havent "heard" anyone else mention that here....though you could search on it to make sure......i would be wondering if it is an issue with something that you have substituted into your diet?.....try going as "whole food" as you can....skipping the treats right now....and check the vit D issues....and perhaps vit A.......if you think it is "cold sores" search on lysine....good luck

Hi!

How interesting, and unfortunate .

Mouth sores are absolutey associated with gluten sensitivity/celiac disease... but they should be going away... not starting!
http://jccglutenfree.googlepages.com/cankersores

Two thoughts.

One is that after removing gluten from the diet, people sometimes go through an extra hypersensitivity phase... where the smallest traces of gluten (even in the form of cross contamination) can provoke major symptoms. Even a person who never noticed symptoms after eating gluten before a gluten free diet, may begin to notice new and significant symptoms. So... it could be that "gluten errors" are provoking the mouth sores.

You might want to be sure you aren't still getting hidden gluten somewhere... for example, do you share your home with other gluten eaters? If so, you need a toaster of your own, and be careful not to let their gluten food get in your way. It is best to have designated cupboards for gluten and non-gluten food. Watch for crumbs in silverware trays and on tables. You need to be sure not to share things like peanut butter jars, margarine tubs, mayo jars, etc, where cross contamination could be a factor. ANd of course, consider other possible sources... like handling pet foods, and double triple check all processed foods.

Second thought: Oral symptoms are often associated with vitamin B deficiencies. It seems odd that this would show up suddenly, after beginning a gluten free diet... but if you aren't already... you might try a B-complex vitamin, along with a basic multivitamin... to see if this helps.

Iron deficiency and zinc deficiency can cause mouth sores, too, I think. You might ask your doctor to run a full nutritional panel on you if it hasn't been done. This is something that should be done for every newly diagnosed celiac, but often isn't. Celiac disease is an autoimmune disease of malabsorption, and symptoms are going to be related to either nutritional deficiency or immune system activity.

On B Vitamins and oral symptoms:
And a parting thought... I did see one reference to casein sensitivity and oral mouth sores. About 50% of those with celiac disease also have casein sensitivity. You might try eliminating cow's milk, but again, hard to know why this would suddenly emerge.

...another thought... have you seen a doctor?

Other things, unrelated, could be causing the sores... like a virus... although I think that would be limited in time to run its course. How long have you been getting the sores?

You could also check with your doctor or local pharmacist on what might help you to be more comfortable in the meantime. My daughter gets mouth sores from time to time, and I know she has found one product over the counter that she swears by... for pain relief and speedy healing. But... I don't know what it was ;(.

Checked with my daughter, and she doesn't remember the name of the product either... but she said they were little press on tabs that you placed over the sores every 8 hours. She even remembered they are gluten free... must have been labeled as such because she is not actually gluten free herself. A pharmacist can probably help you find the product based upon the "press on tabs". I don't imagine there are too many that fit that description.

You might also be interested in the information here:
http://jccglutenfree.googlepages.com/multiplesclerosis

Celiac Disease and MS have overlapping symptoms... and there is at least some speculation that they may even be the same disease process... with "MS" presenting with the neurological symptoms commonly associated with celiac disease... gluten ataxia, peripheral neuropathy, seizures, neuromuscular symptoms.
http://jccglutenfree.googlepages.com...ationsofgluten

The people at MS-Direct promote a gluten free, casein free, legume free diet for the treatment of MS patients, and many have seen remission. It is also known that 50% of those with celiac disease do have cow's milk sensitivity, so you might want to consider removing cow's milk, I have known people with MS and Celiac dx who say the MS has not improved on a gluten free diet, but I always wonder if removing milk and soy would make a difference. I have also known people whose MS symptoms have essentially vanished with dietary changes.

You might also want to read about zonulin... that may be front and center in the development of celiac disease, as well as other autoimmune diseases, such as T1DM, MS, and RA.
http://jccglutenfree.googlepages.com/zonulin

And, of course, Vitamin D deficiency is getting more and more attention as a causitive factor for all autoimmune disease.

The point is, I guess, is that celiac disease and MS may be more directly related than you suspect.

I hope your digestive problems improve soon.... For a bit, you may want to cut back to the very basics of food, whole foods, such as plain meats, vegetables and fruits... and leave all grains, milk products, and processed foods out for a few weeks. If you improve on a simple diet, then you might try cautiously adding other foods back, one at a time. Many people with celiac disease need to cut back to a very basic diet, at least initially.

I just have a quick comment...

Sometimes toothpastes can be at fault. Same with mouthwashes.
The Triclosan in Colgate total and other mouth products has been shown in studies to cause mouth irritation.

One thing that might heal up the sores is Peroxyl rinse. You use this 4 or 5 times a day, with no food/liquid after for about an hour, and it will kill the bacteria that are preventing healing.
Mouth tissue regenerates very quickly, and should start healing up in 24 hrs.

Another culprit is yeast. If you have had antibiotics recently, you may have Candida.

Zinc, Vit C and CoQ-10 help the gums and mouth tissues remain healthy.