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Old 08-08-2010, 07:58 PM #11
kaysus1973 kaysus1973 is offline
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Join Date: Aug 2010
Location: Sandy Lake, PA
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kaysus1973 kaysus1973 is offline
Junior Member
 
Join Date: Aug 2010
Location: Sandy Lake, PA
Posts: 23
10 yr Member
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Quote:
Originally Posted by fattoush View Post
I have tried Topamax twice. First, totally naively and under the guidance of a very famous Philly doctor who warned me of nothing and never listened to nothing. It was the nurse who practically saved me from suicide when I had reached 100 mgs and shared my thoughts. Of course, I had all the other side effects, severe weight loss, hair loss, words loss, jitteriness, insomnia.... but I was migraine free!!!!!!
I could never forget that. Nothing ever gave me that freedom after Topamax. So a few years later, with a much nicer neuro, a Pdoc on board, and a plan to titrate very slow, I am hoping I can do it. Any one got results at as little as 50 mgs and for a while? Your side effects please? I do get depressed at as soon as 50mgs but hope I can handle it better than migraine.

I've tried every other prophy, believe me please. I don't want to list them.

Am I taking a stupid step?
fattoush........i hear your frustration! I am on a prophylactic that u may not have tried. Many general neuros aren't aware of it. Many headache specialists do. It is called NAMENDA. It is actually an ALZHEIMER'S drug! It is not FDA approved for the prevention of migraines so many insurance companies won't pay 4 it...........but it has been a life saver 4 me and 4 many others who have been on it! I have been on it 4 3 years.

Good luck on your search for a good preventative routine so your life can't get back to normal!
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