Thanks Doc. Those were wonderful links and I spent a great deal of time reading through them today. If anything I think they may have convinced me he needs to come off of it and we need to try something else. If it was working great, it would be an easier decision. However, it's not working well at all and I'm not so sure it's worth the risk to keep upping the dose and then have to worry about getting him off it at a later time. The withdrawals from this sound difficult. Granted, there's not too many good news stories on the internet and difficulties run rampant, but he's so young...I'm more petrified to keep him on it in light of how he's feeling.

BTW, he's not a big computer buff, but I understand your concern. He has spent all summer at PT and, believe me, he pays attention to his posture more than any kid I know!

Thanks a ton for your well wishes, suggestions and links. It's greatly appreciated.