!OMG, it's almost like reading my own story!

Started out medically treating with diamox, proceeded to have ONSF to my right eye only to have my left eye done a month later, and yet the headaches continued. Two months later had my first shunt placed, LP shunt. Headaches decreased significantly but there were still days when I had those horrible ones yet.

Am currently on topamax & gabapentin which is doing well with the headaches most days. I have a great deal of other pain with OA, RA,.. have what they often refer to as a complicated medical history...just lucky I guess.

Sorry to hear you have this & I do hope you can get back to your medical training/education. Perhaps you could change the way some (in reality, many) docs think & treat us IIH patients. Think we all have stories where we have been treated less than kind at one time or another.
Peg

Hang in there! I pray it does get better for you!