Hi im new here ive been dealing with psuedo tumor but I always have headaches with throwing up that.last two to three weeks at a time ive loss alot of waight due to this so much that I look like im dieing what can I do ive been having test after test and still im not getting awnsers they just keep giving me more test and more meds this is so not how I thought my life sould go I feel alone and deressed can someone help anyone dealling with the same thing please

Hi Mel,

I read your post in the introductions forum. There is a forum here on NT for Arnold Chiari Malformation & Syringomyelia (you mentioned Chiari Malformation in your other post); you might post something there as well.

Are any of the neurologists you're seeing headache migraine specialists? Many neurologists treat headaches, but few are so specialized that they limit their practices solely to headache, and that's the type I mean. It may take some doing to find one; I suffered from near-daily migraines for a couple of years before I finally stumbled upon a migraine specialist in my own area, and he was able to help me significantly with three questions.

What kinds of meds have you tried for the headaches and for the nausea? We don't want to suggest anything that you've already tried that hasn't worked.

I recall reading another new post regarding pseudotumor (a.k.a. Idiopathic Intracranial Hypertension) within the last few days.

Doc

I am 19 years old and I have Arnold Chiari Malformation. Your Symptoms are a lot like the ones I had except I didn't throw up I am Just Nauseous all the time. They prescribed me Phenergan for it. I Found the Chiari at 16. I waited a year to have my first decompression surgery and it helped my daily headaches. But since I waited so long to have mmy surgery my other symptoms didn't improve after the surgery. Such as nausea, balance, coordination, dizziness, etc...Im Actually getting worse and Im looking at a spinal fusion next month for my balance and coordination. From this condition I have developed ataxia, sleep apnea, neuropathy, depression, POTS, cervical dystonia. My advice to u is to have an mri of the brain with contrast to see if they find chiari. The sooner u figure this out the better outcome u will have.