NeuroTalk Support Groups - does anyone with migraines suffer these symptoms?

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- - does anyone with migraines suffer these symptoms? (https://www.neurotalk.org/headache/206358-migraines-suffer-symptoms.html)

Quote:

Originally Posted by Lara (Post 1080525)

I get migraine with aura but sometimes I just get the aura and not the headache.

This is acephalgic migraine—a.k.a. "silent migraine".

Doc

Quote:

Originally Posted by Sitke (Post 1080489)

...last August I started with the walking again and could walk a block, look up and not remember walking the block

Sitke, I don't know if this is the same thing or not, but I've had instances all my life of walking, biking, driving, etc., and been so distracted/lost in thought that suddenly when I came out of it I was someplace I might not recognize for a few seconds to minutes, and not remember the intervening trip.

This has nothing to do with my headaches/migraines, and has never caused an accident. I can't say my brain shuts down or that I'm unaware of things; I'm just—as far as I can tell—just distracted/lost in thought/daydreaming.

What you're describing may be quite different(?) :Dunno:

Doc

Hi Doc,

I thought it may have happened because I was so distracted or lost in thought but it feels completely different, no thoughts before it happens, I just seem to wake up, no thoughts during it.

Yes Lara, no headache, no nausea, no aura, nothing...my brain shuts off for some reason.

I do have PCS from a bad concussion last year, hit my head but have no memory of doing it, had severe pressure building in my head, contusion and confusion at the ER, never been the same since, just awful really but determined to find out what's going on, another Dr at the ER last December after having seizure like activity said TBI....:grouphug:

Sitke,
When I was reading some more information yesterday about "silent migraines",
I kept coming across references to amnesia.

Your episodes may not be related but I thought I'd post for you.

Migraine FAQs: What are symptoms of silent migraines?
http://migraine.com/faqs/what-are-sy...ent-migraines/

Quote:

Originally Posted by Lara (Post 1084737)

I have frequent episodes of deja vu - only found out that it was a form of epiliepsi but neurologist wasnt that concerned. Since i dont fear it I am getting accustomed to it but it seems odd to have it 4-5 times per month when I would go years or it seemed years without having it then it would be a long time in between. I do know I get an odd feeling sometimes if I am in a store like a walmart etc - doesnt alsways happen but I feel light headed like I am moving ectremeely fast and need to go sit for a bit til it passes. it comes on out of nowhere and I lose some sense of time and place but then its over

Having the computer or tv set it off sounds like epileptic events. You will probably have a emg and have the nerve and electrical responses tested.
I do wish you the best and I know it is easier said than done but try to avoid some things that set it off or get a screen to cover your computer and see if it helps?

I am not a dr. or anything just a medical nerd.

Quote:

Originally Posted by Sitke (Post 1079588)

Hello,

Thought I'd come on over here to see if anyone has suffered these symptoms.

Brief background, had a severe concussion from car accident last year, also physical injuries still in therapy for, neck and shoulder.

Since the accident I've had awful cognitive problems, about 5 months later started with episodes of not remembering what I had just done, for eg would walk a block and not remember doing it, opening cupboards and opening a bottle and suddenly realize I'd done it.

In December my brain felt like it "shifted" I felt sudden nausea and fear, my husband said I had a fixed stare, then my arms felt like they had electricity shooting down them and they were shaking, then 2 fingers started twitching then it all passed, lasted for a few minutes.

At the ER I suddenly could not write and I started shouting the same thing over and over like a robot, could not stop myself even though I knew it was me somehow, then I started coming out of it and felt clearer.

Dr thought maybe some kind of seizure or complex migraines so I am wondering if anyone with migraines has experienced these things?

Lights can set these episodes off, computer, TV and in stores.

Over the weekend I suddenly got the most severe headache and my head fell forward and my eyes closed, I wanted to shout out but couldn't, when I did manage to open them I was told I was staring weirdly, to me it felt like I couldn't break the stare for about 30 secs then went back to normal.

Don't always get headaches though, notice with the nicer weather I am getting them.

So frustrating but am seeing a neurologist next month.

sorry this is long, I'm worried, thank you for any advice.

Hi Sitke,
I had the same occurrence but my neurologist called it "complex partial seizures". Is that what you mean by PCS? I have heard it called Partial Complex Seizures too.You described it perfectly by saying you just seem to wake up. I would seem to lose about 30 seconds or a minute of my life and just seemed to wake up bewildered.

people who were with me reported I was staring blankly or if I was walking sometimes I would fall down.

My seizures were from Lyme Disease though, not an accident.

I wish you the best and hope you find solutions.
Diandra

Quote:

Originally Posted by Sitke (Post 1080837)

Quote:

Originally Posted by Sitke (Post 1080837)

I do have PCS from a bad concussion last year, hit my head but have no memory of doing it, had severe pressure building in my head, contusion and confusion at the ER, never been the same since, just awful really but determined to find out what's going on, another Dr at the ER last December after having seizure like activity said TBI....:grouphug:

Quote:

Originally Posted by Diandra (Post 1086826)

Hi Sitke,
I had the same occurrence but my neurologist called it "complex partial seizures". Is that what you mean by PCS?

PCS = Post Concussion Syndrome
TBI = Traumatic Brain Injury

Traumatic Brain Injury and Post Concussion Syndrome forum

Doc