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Old 07-06-2014, 05:57 PM #1
Sitke Sitke is offline
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No Dr. Smith, I had no headache/migraine, just looked up and realized I'd slowed the car down and was almost at a full stop and didn't remember doing it, then felt confused looking around.

Yes, Bbbiejo it was scary, thank God it was very quite on the road and cars were way over in another lane.

I can't tell you how many times I mentioned these things to my Dr and she kept ignoring it or saying nothing, changed Dr's and will see the neuro next month, last August I started with the walking again and could walk a block, look up and not remember walking the block, ER Dr said maybe absence seizures so it's always maybe that or maybe complex migraines, very frustrating.

I am so worried as no one is taking this seriously and it's just awful
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Old 07-06-2014, 10:02 PM #2
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Hello Sitke,
That sounds really bad.

There are dozens of different types of migraines. I get migraine with aura but sometimes I just get the aura and not the headache.

What you are describing doesn't sound to me like any migraines I have heard about but the only one I really know much about is what I experience.

Even in the types of migraines where consciousness can be affected to some degree, like basilar artery migraines, there are other signs and symptoms that accompany it. Like a syndrome - a group of different symptoms.

What you are describing in your last post here is a condition without a headache, and I take it without an aura, without nausea, and without any other symptoms apart from confusion afterwards.

I've never heard of anyone with a migraine walking around the block and not remembering that they've done it.

Because of your history with your PCS (and TBI?) I would be most concerned!
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Old 07-07-2014, 11:30 AM #3
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Quote:
Originally Posted by Lara View Post
I get migraine with aura but sometimes I just get the aura and not the headache.
This is acephalgic migraine—a.k.a. "silent migraine".

Doc
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Old 07-07-2014, 11:43 AM #4
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Quote:
Originally Posted by Sitke View Post
...last August I started with the walking again and could walk a block, look up and not remember walking the block
Sitke, I don't know if this is the same thing or not, but I've had instances all my life of walking, biking, driving, etc., and been so distracted/lost in thought that suddenly when I came out of it I was someplace I might not recognize for a few seconds to minutes, and not remember the intervening trip.

This has nothing to do with my headaches/migraines, and has never caused an accident. I can't say my brain shuts down or that I'm unaware of things; I'm just—as far as I can tell—just distracted/lost in thought/daydreaming.

What you're describing may be quite different(?)

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Old 07-08-2014, 12:35 PM #5
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Hi Doc,

I thought it may have happened because I was so distracted or lost in thought but it feels completely different, no thoughts before it happens, I just seem to wake up, no thoughts during it.

Yes Lara, no headache, no nausea, no aura, nothing...my brain shuts off for some reason.

I do have PCS from a bad concussion last year, hit my head but have no memory of doing it, had severe pressure building in my head, contusion and confusion at the ER, never been the same since, just awful really but determined to find out what's going on, another Dr at the ER last December after having seizure like activity said TBI....
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Old 07-24-2014, 03:41 PM #6
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Sitke,
When I was reading some more information yesterday about "silent migraines",
I kept coming across references to amnesia.

Your episodes may not be related but I thought I'd post for you.

Migraine FAQs: What are symptoms of silent migraines?
http://migraine.com/faqs/what-are-sy...ent-migraines/
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Old 07-27-2014, 01:40 PM #7
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Quote:
Originally Posted by Lara View Post
Sitke,
When I was reading some more information yesterday about "silent migraines",
I kept coming across references to amnesia.

Your episodes may not be related but I thought I'd post for you.

Migraine FAQs: What are symptoms of silent migraines?
http://migraine.com/faqs/what-are-sy...ent-migraines/
I have frequent episodes of deja vu - only found out that it was a form of epiliepsi but neurologist wasnt that concerned. Since i dont fear it I am getting accustomed to it but it seems odd to have it 4-5 times per month when I would go years or it seemed years without having it then it would be a long time in between. I do know I get an odd feeling sometimes if I am in a store like a walmart etc - doesnt alsways happen but I feel light headed like I am moving ectremeely fast and need to go sit for a bit til it passes. it comes on out of nowhere and I lose some sense of time and place but then its over
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Old 08-02-2014, 10:20 PM #8
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Hi Sitke,
I had the same occurrence but my neurologist called it "complex partial seizures". Is that what you mean by PCS? I have heard it called Partial Complex Seizures too.You described it perfectly by saying you just seem to wake up. I would seem to lose about 30 seconds or a minute of my life and just seemed to wake up bewildered.

people who were with me reported I was staring blankly or if I was walking sometimes I would fall down.

My seizures were from Lyme Disease though, not an accident.

I wish you the best and hope you find solutions.
Diandra


Quote:
Originally Posted by Sitke View Post
Hi Doc,

I thought it may have happened because I was so distracted or lost in thought but it feels completely different, no thoughts before it happens, I just seem to wake up, no thoughts during it.

Yes Lara, no headache, no nausea, no aura, nothing...my brain shuts off for some reason.

I do have PCS from a bad concussion last year, hit my head but have no memory of doing it, had severe pressure building in my head, contusion and confusion at the ER, never been the same since, just awful really but determined to find out what's going on, another Dr at the ER last December after having seizure like activity said TBI....
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Old 08-04-2014, 07:56 AM #9
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Quote:
Originally Posted by Sitke View Post
I do have PCS from a bad concussion last year, hit my head but have no memory of doing it, had severe pressure building in my head, contusion and confusion at the ER, never been the same since, just awful really but determined to find out what's going on, another Dr at the ER last December after having seizure like activity said TBI....
Quote:
Originally Posted by Diandra View Post
Hi Sitke,
I had the same occurrence but my neurologist called it "complex partial seizures". Is that what you mean by PCS?
PCS = Post Concussion Syndrome
TBI = Traumatic Brain Injury

Traumatic Brain Injury and Post Concussion Syndrome forum

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