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Anyone recognize this headache progression?

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Old 08-31-2018, 10:01 PM   #1
whiteaa
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Join Date: Jun 2015
Posts: 67
Default Anyone recognize this headache progression?

Hi guys! I feel desperate waiting for my neurology appointment and need any information that anyone has.

Background if it helps - I have CRPS with gastroparesis. Not currently on any meds for those conditions and manage well with alternative strategies, including being on a gluten free diet and avoiding my additional 71 food sensitivities.

I started getting headaches this past winter. I had one offs of headaches randomly in my life so at first I didn't think much of it. I thought maybe I had been glutened or something.

But they started happening really frequently, like every other day. They would start between 9 and 10am every time and feel like an icepick behind my eye, with a swollen pain radiating through the rest of my head. It would be continuous until the afternoon if I was lucky, evening if I was unlucky (much longer than I've ever heard of a cluster headache lasting). Most of the time it came with massive heavy feeling and inability to do much of anything at all. Laying down didn't help and standing up would give the pain an extra jolt. I wasn't light sensitive and didn't feel particularly like sleeping or restless.

They come for periods of weeks and then I'm free for a few weeks.

This latest one is different. It's been lower in intensity without the icepick feeling as much, but enough to keep me from doing things I want to do. And it has been with me for 2 weeks now. It is worst in the morning, dulls in the afternoon/evening, and now (brand new thing it's doing) returning at night.

My neurologist gave me indomethacin to take every morning since Wednesday and it lowers the duration of the morning intensity but now for the first time I'm having blurred peripheral vision with it. And by late evening its worn off. She ordered an MRI and suspects something autonomic, but said "Whatever it is, it isn't a classic presentation."

Please tell me this sounds familiar to someone! Or that any of you have discovered a trick to aborting these headaches. I am desperate.

Thank you ahead of time!
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