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10-07-2010, 05:22 PM | #1 | ||
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I have been having problems with migraines related to my MS. I also have flare ups associated with the migraines. My neurologist wants me to have the nerve block. From what I've read, they only last short term. Can anyone give me some information on them?
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10-24-2011, 11:13 PM | #2 | ||
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they last different amounts of time i have had 5 and each one seems to last that little bit longer. to start with you will be allowed 3-4 within a 12 month period but then it will go to two a year. be mindfull the first one is the worst and does increase your pain as it is tackling all your nerves but it is only for a short period concidering living with the pain on a daily basis. the second you should be pain free for a while and after each injection it will last longer. the procedure is not nice as you will have a local anasthetic so you will be awake throughout, the first few seconds really hurt but then you don't feel the rest of the procedure being done.If your first injection does make the pain worse please continue to injection 2 before making up your mind whether to continue, your specialist should tell you themselves the first one is the worst but then it should start to get better.i really hope i haven't scared you or put you off, i just wish i had some-one to tell me all this at the start and really hope this helps. give it a go.
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06-17-2012, 07:48 PM | #3 | ||
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Am now awaiting my 10th Gon Block. my pain management specialist has finally arranged them for every 6 months, it's only took 4 years to get there but now with these i am able to live my life and enjoy myself. i still have really bad days where the whole left side of my head, face and neck are so excruciatingly painful but most day's the pain is at a level i can live with.
I would suggest to anyone who suffers with occipital nerve pain to try the GON Block's the first does aggravate the pain but from injection 2 you will start to be able to live. Hope this helps anyone who is suffering too. |
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09-29-2012, 12:36 AM | #4 | |||
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I've had 5 so far, and I feel they're all painful to me. Maybe it's a psychological thing, I don't know.
It does feel absolutely horrible when it wears out, I can't describe that horrible sensation there are no words for it :s |
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10-07-2012, 12:05 PM | #5 | ||
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After 2 nerve blocks, I had my GON ablated approximately two years ago - so far so good. I plan on doing the same for my ON. However, I do not have MS, so I do not know if a nerve can be ablated with MS.
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12-07-2012, 07:58 PM | #6 | ||
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Quote:
i understand how you feel, i am beyond counting how many i have had now. I think i have had another 4-5 since i last replyed to someone on here. Each time the injections really hurt. I have found that it really helps if you arrange work shifts around your procedure. i now leave work after a night shift and go straighht to the hospital. by this time i am that tired that the pain levels are a lot lower than they would have been. keep talking to your Pain management speciallist, tell them exactly how your feeling when the injections wear off. eventually they will listen but you have got to be constantly on at them. there are medications you can take along with the injections that may help out. hope this helps. |
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12-11-2012, 10:16 PM | #7 | ||
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I go every three months for injections. I have two different PM docs and one told me the only way to control ON was to get the injections every 3 months. I told the second PM doc what the first one said and he finally started doing it and I'm in better shape than I was previously. Right now I'm not doing too good, but I'm less than a month out from my next round of injections. Get your PM doc to schedule them every 3 months and see how you fare then. I still have the headaches and the pain, it just doesn't seem to get as bad as they previously were. Best of luck to all of us that deal with it.
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12-15-2012, 11:07 PM | #8 | ||
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04-20-2013, 07:37 PM | #9 | ||
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