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Old 08-25-2009, 07:39 PM #1
MCoffey MCoffey is offline
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Hello:I am new to this forum & would like to introduce myself.....I was diagionsed with Pseudo tumor cerbri hydrocephauls in Jan 2005 Vp prog shunt inserted march 05-developed infection(staph & peritonitus) had 2nd surgery to remove shunt May 05 had last shunt placed Oct 2005. All seemed to be finally going well until March of this year...when bam started feeling bad had several bouts of vertigo and noticed a small lump on shunt track behind ear by the end of March had EXTREME vertigo & vomiting was only able to go to local hopsital where they treated the vertigo & vomiting and told me your in shunt failure you need to see your ns tomorrow! Needless to say I was so sick I could have cared less....well go into neuro he rushed me right in and lowered my pressure and I immediatly felt better.....he had me come in to more times in the following weeks & I seemed to get better. Well in June I developed right ear pressure & a roaring in that ear (shunt is on that side & that was same location of eariler small lump) At that time I was diaginosed with ecrolisis(sp?) infection from a tick bite so was put on strong antibotics and the pressure & roaring dissappeared. After 2 weeks of that med I broke a tooth and yes guess what on the top right side. Then the roaring returned and dentisit thought might have tooth infection HE put me on antibotics until I could get the tooth fixed. Long story I know but I had the tooth fixed a week ago Monday and the roaring & pressure returned with a vengecisis and has been getting worse along with the pressure headache which is now become almost unbearable. Just wonder if anyone else has had something similar if you think it is shunt related or some other issue? Sorry this was so long...
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Old 08-26-2009, 07:37 PM #2
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Hello MCoffey and WELCOME to Neurotalk!!

I don't have any knowledge about Hydrocephalus or what you are dealing with...but didn't want your post to go unnoticed.

Please feel free to roam around in join in anywhere...

Someone should be along shortly to help you or offer advice.

Hope to see you around the boards!!

Abbie
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Old 08-28-2009, 06:31 PM #3
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Bless your heart.

So sorry you're having these serious medical conditions to deal with. As healing goes, each day behind you is another day closer to recovery. Suffering is no fun.

Just some thoughts.

Try to relax, if you can. You're having a bad enough time so you don't need the stress.

Breath deeply through your nose and blow out through pursed lips, about three times, or as you're able to. You may need to be doing exercises for your lungs so as not to get into a pneumonia situation from being ill and in the bed.

Prayer is always comforting. Ask for prayer or silently within your heart is okay too.

You can talk about or ask us anything. We'll understand and try to help.

You condition is a little over my head. Your best answers will be from your caregivers. I know they're busy. They should address your concerns.

If you're able, keep notes of specific things you need answers for so you'll not forget, and maybe keep a pain journal for a later reference to show your caregiver.

It sounds pretty bad right now. It won't always be this way, so just hang in there.
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