advertisement
Reply
 
Thread Tools Display Modes
Old 09-18-2012, 08:41 PM #1
bb28 bb28 is offline
New Member
 
Join Date: Sep 2012
Posts: 4
10 yr Member
bb28 bb28 is offline
New Member
 
Join Date: Sep 2012
Posts: 4
10 yr Member
Default Daughter w/hydrocephalus/dandy walker

Hello, I'm the mother of a daughter who is a month away from 22 years of age. She was born with hydrocephalus caused by a dandy walker malformation. She also has Klippel–Feil syndrome, (fused vertebrae in her neck). She also had a small cleft palate at birth, which was repaired. She has scoliosis of her spine.

She had a vp shunt inserted the day of her birth, (her head was huge with a large cyst in the back). She has been very blessed in that she has only had two shunt revisions. Her last shunt is now 11 years old. She has a severe hearing loss in one ear, profound in the other. She is developmentally much like a baby. She is unable to walk but she can sit and she can scoot around. She is happy most of the time, but has suffered from a lot of ear issues and does have chronic constipation which causes her considerable pain.

She does not talk and I have often wondered if her shunt causes her problems that she can not communicate.

I'm interested in talking with others and sharing who have similar circumstances.
bb28 is offline   Reply With QuoteReply With Quote

advertisement
Reply

Tags
dandy walker, hydrocephalus

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
New/ Daughter with hydrocephalus/dandy walker bb28 New Member Introductions 2 09-20-2012 06:57 PM
dandy walker varaint jeffburns Reflex Sympathetic Dystrophy (RSD and CRPS) 1 06-24-2011 02:51 AM
Desperate for Help Dandy-Walker with Orthostatic Headaches sophiesmom96 Hydrocephalus 3 11-03-2010 12:38 AM
Dandy-Walker, Medtronic Shunt, Orthostatic Headache sophiesmom96 General Health Conditions & Rare Disorders 1 10-26-2010 10:19 PM
Dandy-Walker Syndrome Jaime_S General Health Conditions & Rare Disorders 4 06-11-2010 10:56 PM


All times are GMT -5. The time now is 05:01 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.