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Old 05-20-2011, 01:06 PM #21
Aligallaf Aligallaf is offline
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Many thanks for sharing your son story with us. My son was born with hydrocefalus that was caused by sever bleeding type four. He was shunted when he was two month and now he is seven month old. But he still dose not react with us, dose not hold his head and there is no eye contact. We know that his vision was effected. However, we want to know more about his developmental delays and progress milestone. We feel hopeless and we need some light to be shed on this subject; as to what should we expect or what should we do for him.
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Old 05-20-2011, 01:34 PM #22
Aligallaf Aligallaf is offline
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Thanks for sharing your son's story. My son was born after 31 weeks of pregnancy where he was diagnosed with type four bleeding that led to hydrocephalus. He was shunted when he was three months and now he is eight months. Until now he dose not react with us, dose not hold his head and dose not make an eye contact. We were told that his vision was affected (70-80%). But our main concern is what are we going to expect interm of development delays and when he should achieve his milestone. Also, what can we do to help him.
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Old 01-14-2012, 07:27 PM #23
tbirdowner86 tbirdowner86 is offline
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It has been a while for me to get on again. Broke computer, forgot website address, forgot sign on a password. Sorry it took so long to get back. Dylan is just awesome. He is a big help to his brother Thomas.
Thomas has come a long way since my last post. We have his yearly CTscan coming up in a week. He has hemiperisis. Which his right side has limited mobility. Kinda like a stroke victom. Thomas' right leg works at 90%. His right hand/arm is about 50%. His physical therapist has been a big help is showing us how to work with him. Who knew my massage therapy training would be so useful now. Other than his limited mobilty, he is perfect. His cognitivelevel is good. He is a little behind, but it is due to being 10 weeks early as well as hydro. Vision has not been tested in a while. The pediatrician wants to get a follow up test done, just to check though. As you can see in my profile pic, THOMAS IS WALKING! We had to get an arm brace for his walker. The first time we strapped him in, he took off with a strut. He was walking with a mission. I'll try to post more often now everything is in order.
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Old 01-14-2012, 07:47 PM #24
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Quote:
Originally Posted by Aligallaf View Post
Thanks for sharing your son's story. My son was born after 31 weeks of pregnancy where he was diagnosed with type four bleeding that led to hydrocephalus. He was shunted when he was three months and now he is eight months. Until now he dose not react with us, dose not hold his head and dose not make an eye contact. We were told that his vision was affected (70-80%). But our main concern is what are we going to expect interm of development delays and when he should achieve his milestone. Also, what can we do to help him.
Aligallaf, I'm sorry I haven't responded until now. I had been off line for a while. My heart breaks to hear of your son. I know that it is scary and fearful. Your son will have a lot to overcome. Get as much support as you can. Physical therapists will be a huge help if you can get one.
His development will vary due to stimulation. The more you work with him, the better. Get excited over every little improvement. No matter how small others may think it is. Be positive.
As far as his working on his neck strength. We would lay our son on his back. Then lift him by his arms just until his shoulders lift off the surface. His head my roll back, that's why you don't lift so high. Just make silly, or funny noises to get him to look towards you. The stronger he gets the higher you lift him up. We did this until Thomas was 13-14 months.
Talk to his doctor about visual therapy. Drastic contrast has been helpful with some visually impaired patients. Sit in a room with the lights out, and move a flashlight around. See if he would follow it around.
I know you posted this a while ago, How is your son doing now? I'll be on at least daily now.
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Old 01-15-2012, 12:11 AM #25
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I As you can see in my profile pic, THOMAS IS WALKING! We had to get an arm brace for his walker. The first time we strapped him in, he took off with a strut. He was walking with a mission. I'll try to post more often now everything is in order.
How exciting for you all, and thank you for the picture. He sure does look happy.
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