On Oct. 24,2009 my twin sons was born. They were 10wks 5days early. Thomas had a brain bleed. Level 3 on right, and level 4 on left. By Dec 23, the right side had resolved itself completly. The left side partially resolved. His right ventrical appeared to be enlarged. After a MRI, the ventrical was normal. There was however brain deterioration.
Thomas' only evidence of hydracephalus is a) the size of his noggin b) little mobility of right arm. Now due to the pediatrician's office failure to decide which of the insurances to accept Thomas has ben refered to a neurosurgeon. Surgery is going to happen. Don't know when. The first appointment is tomorrow. My question in what am I to expect to hear, see, and do? The enternet talks about all possabilities. The pictures are sevear. Is there anyone out there that is "normal"? I know it's a long time away, but what happens to Thomas when my wife and I are gone.