Quote:
Originally Posted by Shunted96
Hi Pogo,
The mysteriousness of all this is that I had the exact same symptoms last year and eventually had the shunt changed in October 2013 but then began having symptoms again in November 2013 and had the shunt once again changed in June 2014. But now began having symptoms in August 2014. I hope i can find a more permanent solution. I will suggest the Orbis Sigma valve to my surgeon but being in Australia it's hard to know what's available to us compared to the US.
Thank you for your suggestion xoxo
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I'm not sure I would suggest specific shunts to a surgeon. Sorry, didn't think to ask before... Have you read up on slit ventricle syndrome? There are some papers/talks from Dr Rekate, some available online that discuss a lot of the svs issues & treatment options and how to classify patients. His stuff has evolved a bit so if you see different things, the point it was released would explain many differences you might spot, recent probably better for patients. They have an approach that might be worth asking your surgeon about. Note there are some svs patients who no longer need a shunt. He is *the* expert on this stuff. He used to be a Barrow Neurological Institute, think he's currently in NY state.
let people know how it goes & best wishes!
-Pogo
10-31-2014, 12:48 AM
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