advertisement
Reply
 
Thread Tools Display Modes
Old 02-11-2010, 11:03 PM #1
TEC49 TEC49 is offline
Junior Member
 
Join Date: Apr 2009
Location: CA
Posts: 16
15 yr Member
TEC49 TEC49 is offline
Junior Member
 
Join Date: Apr 2009
Location: CA
Posts: 16
15 yr Member
Default

Quote:
Originally Posted by Ripplegirl99 View Post
Hello,

When I had my last shunt revision I found out I had aqueductal stenosis. I was not born with hydrocephalus. I got hydro at six months of age due to menengitis. I thought that aqueductal stenosis was usually gotten at birth?

How did I get this disorder and why was it never caught when I was younger?And are there other ways of getting this disorder than at birth?

Ripplegirl99
Hi Ripplegirl99,
I'm a 50 yo, I was diagnosed with enlarge ventricles and tention headaches 1987. I was hit on the head during combat manevurers in 1980. The actual ediolgy is unknown,however I can trace my headaches back to that incident. I had shunt surgery 12/2006, because of complication during surgery a Subdural Hemotoma developed requiring additional surgeries 4 to be exact. I guess I'm doing well, still on pain meds to control headaches, My short term memory got worse I currently am 100% IU 80% SC P&T and getting SSDI at a 100% rate. I can no longer earn a living. Its good I had paid enough into Social Security and served 18 years in the military. My life has totally changed.

Don't mean to scare anyone, but this is a terrible condition. According to my wife I'm much better, because I use to passout alot, get lost, lost by vision and the headaches were unbarable. I still have bad headaches,severe memory problems, depression, balance problems etc.. I would have the surgery again if I were in the same situation. I'm tried of writing. If someone has specific question to ask me I'll do my best to share my experience with you.
God Bless you
TEC49 is offline   Reply With QuoteReply With Quote
Old 04-25-2012, 01:40 PM #2
rbasham rbasham is offline
New Member
 
Join Date: Mar 2012
Posts: 1
10 yr Member
rbasham rbasham is offline
New Member
 
Join Date: Mar 2012
Posts: 1
10 yr Member
Heart Did the VA do your shunt for hydrocephalus?

I was wondering if the Veterans Administration did your shunt for the hydrocephalus. I am a veteran rated the same as you but I am having a hard time with them wanting to treat my hydrocephalus or send me to a neurosurgeon. In Wichita it is fee based, both the MRI and the visit to the neurosurgeon. They keep getting me the run around.



Quote:
Originally Posted by TEC49 View Post
Hi Ripplegirl99,
I'm a 50 yo, I was diagnosed with enlarge ventricles and tention headaches 1987. I was hit on the head during combat manevurers in 1980. The actual ediolgy is unknown,however I can trace my headaches back to that incident. I had shunt surgery 12/2006, because of complication during surgery a Subdural Hemotoma developed requiring additional surgeries 4 to be exact. I guess I'm doing well, still on pain meds to control headaches, My short term memory got worse I currently am 100% IU 80% SC P&T and getting SSDI at a 100% rate. I can no longer earn a living. Its good I had paid enough into Social Security and served 18 years in the military. My life has totally changed.

Don't mean to scare anyone, but this is a terrible condition. According to my wife I'm much better, because I use to passout alot, get lost, lost by vision and the headaches were unbarable. I still have bad headaches,severe memory problems, depression, balance problems etc.. I would have the surgery again if I were in the same situation. I'm tried of writing. If someone has specific question to ask me I'll do my best to share my experience with you.
God Bless you
rbasham is offline   Reply With QuoteReply With Quote
Old 10-08-2014, 12:46 PM #3
manikinxvx manikinxvx is offline
New Member
 
Join Date: Feb 2009
Location: SW, Wisconsin, USA
Posts: 5
15 yr Member
manikinxvx manikinxvx is offline
New Member
 
Join Date: Feb 2009
Location: SW, Wisconsin, USA
Posts: 5
15 yr Member
Thumbs up

Thank you to everyone who responded to my questions. I do apologize for having just dropped in, asked a question and then just left the group(s) for several years.

I truly do appreciated the responses.
manikinxvx is offline   Reply With QuoteReply With Quote
Old 04-09-2010, 10:50 AM #4
cyberlady29 cyberlady29 is offline
New Member
 
Join Date: Feb 2010
Posts: 1
10 yr Member
cyberlady29 cyberlady29 is offline
New Member
 
Join Date: Feb 2010
Posts: 1
10 yr Member
Default

Quote:
Originally Posted by Ripplegirl99 View Post
Hello,

When I had my last shunt revision I found out I had aqueductal stenosis. I was not born with hydrocephalus. I got hydro at six months of age due to menengitis. I thought that aqueductal stenosis was usually gotten at birth?

How did I get this disorder and why was it never caught when I was younger?And are there other ways of getting this disorder than at birth?

Ripplegirl99
cyberlady29: Shunts can overdrain . I had that problem. I am an adult with hydrocephalus/aqueductal stenosis with a shunt to the atrium.
cyberlady29 is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
My name is Jennifer I am 22 year old with hydrocephalus, just trying to make friends Jennifer Hydrocephalus 35 05-06-2011 04:29 AM
Hydrocephalus, Chronic Pain and Lost Ripplegirl99 Chronic Pain 5 12-16-2009 04:28 AM
Hydrocephalus in the news Braindrain Hydrocephalus 2 09-11-2006 08:55 AM
Clinical Trial for Stenosis marmar Spinal Disorders & Back Pain 1 08-30-2006 12:56 PM


All times are GMT -5. The time now is 02:15 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.