advertisement
Reply
 
Thread Tools Display Modes
Old 07-26-2011, 07:08 PM #1
jack2511 jack2511 is offline
New Member
 
Join Date: Jul 2011
Posts: 1
10 yr Member
jack2511 jack2511 is offline
New Member
 
Join Date: Jul 2011
Posts: 1
10 yr Member
Default Any help appreciated....

I am the mother of a little boy who (as of yesterday was a month old) has hydrocephalus. He was born at 33 weeks and due to his prematurity, had an intraventricular bleed which caused the hydrocephalus. He had a temporary reservoir placed two weeks ago and have been tapping it and draining it every morning. He was finally big enough for a shunt and scheduled to have it placed tomorrow morning. Each time they drain the fluid, they send it to the lab for a culture. Unfortunately, today they found a bacterial infection in it. His surgery is not postponed until the infection is gone. If it does not clear up after three days of antibiotics, he must undergo 21 days of a stronger antibiotic and then he would be able to have surgery. My heart is broken for him as it seems like he cannot catch a break. Has anyone experienced anything like this? I am so scared for him that it is meningitis and that it will do major damage. I am so new to this and would like to know how "normal" this is.
jack2511 is offline   Reply With QuoteReply With Quote

advertisement
Old 07-28-2011, 09:44 PM #2
lcms0516 lcms0516 is offline
Junior Member
 
Join Date: Jan 2008
Location: Maryland suburbs of DC
Posts: 65
15 yr Member
lcms0516 lcms0516 is offline
Junior Member
 
Join Date: Jan 2008
Location: Maryland suburbs of DC
Posts: 65
15 yr Member
Default

Quote:
Originally Posted by jack2511 View Post
I am the mother of a little boy who (as of yesterday was a month old) has hydrocephalus. He was born at 33 weeks and due to his prematurity, had an intraventricular bleed which caused the hydrocephalus. He had a temporary reservoir placed two weeks ago and have been tapping it and draining it every morning. He was finally big enough for a shunt and scheduled to have it placed tomorrow morning. Each time they drain the fluid, they send it to the lab for a culture. Unfortunately, today they found a bacterial infection in it. His surgery is not postponed until the infection is gone. If it does not clear up after three days of antibiotics, he must undergo 21 days of a stronger antibiotic and then he would be able to have surgery. My heart is broken for him as it seems like he cannot catch a break. Has anyone experienced anything like this? I am so scared for him that it is meningitis and that it will do major damage. I am so new to this and would like to know how "normal" this is.
What your boy is going through is semi-'par for the course'. What I mean by that is, where Hydrocephalus is concerned, there is no 'normal'. It is the abnormal, that becomes 'normal'.

I am not saying this to be flippant or ignorant.

I was born with a ventricular brain aneurysm in May'67 and, the aneurysm caused my Hydrocephalus. The first nine years of my life, were spent in hospitals, hospital ORs' and stuck at home. I didn't go to school that much because of my Hydrocephalus back then. The only thing I get now is x-rays and/or CT-Scans(I can't have MRIs' because of metal clips on the aneurysm) and/or EEGs' every five years since my Hydrocephalus has seemingly stabilized.

As for the possibility of meningitis, that needs to be determined ASAP, because meningitis regardless of the cause, is dangerous in and of itself.
lcms0516 is offline   Reply With QuoteReply With Quote
Old 09-06-2011, 11:24 AM #3
carleecolt carleecolt is offline
Junior Member
 
Join Date: Sep 2011
Posts: 14
10 yr Member
carleecolt carleecolt is offline
Junior Member
 
Join Date: Sep 2011
Posts: 14
10 yr Member
Default

Quote:
Originally Posted by lcms0516 View Post
What your boy is going through is semi-'par for the course'. What I mean by that is, where Hydrocephalus is concerned, there is no 'normal'. It is the abnormal, that becomes 'normal'.

I am not saying this to be flippant or ignorant.

I was born with a ventricular brain aneurysm in May'67 and, the aneurysm caused my Hydrocephalus. The first nine years of my life, were spent in hospitals, hospital ORs' and stuck at home. I didn't go to school that much because of my Hydrocephalus back then. The only thing I get now is x-rays and/or CT-Scans(I can't have MRIs' because of metal clips on the aneurysm) and/or EEGs' every five years since my Hydrocephalus has seemingly stabilized.

As for the possibility of meningitis, that needs to be determined ASAP, because meningitis regardless of the cause, is dangerous in and of itself.
I agree that nothing is normal, or to be expected. Thats why you have to take it a day and a symptom at a time!
carleecolt is offline   Reply With QuoteReply With Quote
Reply

Tags
hydrocephalus

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
any info would be appreciated ouch Sleep Apnea & Sleep Disorders 2 12-20-2009 04:35 PM
Help would be appreciated... mechanical ghost Epilepsy 7 08-23-2009 11:09 PM
Any feedback much appreciated please hippygal Parents with Bipolar Children 6 04-28-2008 10:01 AM
any help would be appreciated dagm131 Medications & Treatments 0 10-26-2007 11:04 AM


All times are GMT -5. The time now is 06:03 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.