Hi, Not sure if you are still part of this thread.. I hope so because I really want to see how you are doing and if anything has been resolved.
My daughter is 17 she has a VP shunt and has had the original shunt and 2 revisions. Last year around this same time of year she had terrible stomach problems in and out of the hospital, bowels full of poop. We went to the gastro dr, test after test and they couldn't figure it out?? She just learned to deal with it. We were on vacation in Phoenix and we almost lost her the tube in her stomach was blocked and she had to have an emergency revision. So I thought that was the whole reason for the stomach pains... Well the last couple of weeks the pain and bowel back up is back she spent 2 days in the hospital. All of the scans came back fine (of course). They gave her the stuff you take when you get a colonoscopy and she was completely cleaned out. That was Sunday she has not pooped since and the pain is getting intolerable.

So just to keep everyone posted on here since I haven't been on here in a while. I had my first bowel obstruction in Dec 2011 and had another one last year in May. I am having a lot of issues that I am trying to figure out with my neurologist because I am tired of suffering with heaviness and headaches everyday and double vision etc. I feel like I am at a dead end because he wants me to try Botox for headache prevention. My muscle weakness is getting worse because everything I do causes my arms to burn including typing. I am so stressed.