Chris

So glad to hear that Ethan is doing well on the Artane? Has he been tested for DRD, dopa-responsive-dystonia? I am reading Caroline's blog daily, what a little angel you have there.

Suzie

Havent heard of DRD but will be researching it now! :-)

Hello...
 

I am so glad to hear Ethan has been doing very well and is enjoying his grandparents.

Congratulation on the birth of your gorgeous precious little girl. I hope that her struggle is short-lived and that, in time, her situation greatly improves.
Keep strong and know we are thinking and praying about all of you, I hope & pray that your precious baby grows stronger with each and every day and heals quickly.

The road may be bumpy but remember we are here if you need us.
{Hugs}
Deborah

PS Austin was just Dx'd with DRD Dopomine Responsive Dystonia he was put on Senimet and he has not had his legs go out in over 6 weeks, he was amazed on how much it has helped, me I am still wondering what why and who, but will take any help to save hime from falling and not bering able to walk I wonder how many people with Hydro have this?

Hey Chris,

We are all here if you need us...:) Kristin