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Old 05-20-2012, 11:33 PM #5
MissRachelRoo MissRachelRoo is offline
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Join Date: May 2012
Posts: 8
10 yr Member
MissRachelRoo MissRachelRoo is offline
Junior Member
 
Join Date: May 2012
Posts: 8
10 yr Member
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Quote:
Originally Posted by annakkro View Post
That makes sense that it probably is your catheter hitting a nerve, since you weren't having the spasms before it was revised. I, too, had trouble with the distal end moving (and wrapping around my diaphragm), so much so, that they decided to shorten it, so now it only comes down to the bottom of my sternum so it can't reach any organs. It has solved the problem. I hope the problem goes away for you. It sounds like you and your neurosurgeon are on the same wavelength which is really helpful, and unfortunately rare! Keep us posted on any developments, it's from people sharing their trials that's directly helped me.
Unfortunately, my neurosurgeon doesn't have much to do with any of it except the actual surgery. It's the general surgeon who's on the same wavelength, and I'm incredibly thankful for him! The pain has not changed any yet, still having spasms, but it will only have been 6 weeks since the last surgery on Thursday, so I'm hoping it will still go away. After all these complications, I'm terrified to let them do anything, even prick my finger for fear of infection, so I'm very scared that they will decide to shorten it and something will go wrong. My neurosurgeon has said if he has to take it out, he will not put another one in (he's quite pompous and uncaring). But right now, everything besides the spasm is healing great!
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pelvic pain, pseudotumor cerebri, vp shunt


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