Hello,
I posted this question in a different part of this forum. I am new here and still learning the ropes, but I so need help with this. Here is what I posted and I hope you are able to help.
Hello,

I have a 9 year old daughter who had a right functional hemispherectomy when she was 8 months old. She had her shunt placed shortly after that and back in June of this year was her first replacement. It was an emergency surgery because the shunt had become extremely clogged. I have several questions.

1. How much pain were you in prior to your replacement and for how long?

2. How different did you feel after the replacement? Did you have any issues with sensory, behavior or have any pain afterwards?

My daughter is different, since the surgery and has regressed in several areas. I cant put my finger on one thing... but sooo different with her sensory... so much she is refusing to take baths. I cant even wash her hair she seems like she is in such extreme pain. She is going to have a Shunt series test some time in the next week.

Any help - speaking for her would be wonderful!

Thank you!

I have been looking and researching EVERYWHERE!! For someone with the same problem as my son. This situation may be a little bit different. But I will take any help I can get. My son has had multiple shunt revisions his last one was about 2 years ago. But ever since his last revision his head is extremely sensitive to the touch anytime his head is touched in that area he will be in tears instantly. The dr. Says there isn't a problem with his shunt and he isn't haven any signs of a malfunction. I'm looking for any answers or reasoning as to why this is happening.