Hi all. I am new here and am happy to have found this board. It is frustrating trying to find information and it's like I have to scour Google. I have not been to a neurologist in years. In fact, I went in for a routine check up about 7 years ago complaining of terrible abdominal pain and gastrointestinal problems. At that time they checked everywhere but ended up stating there were no problems and diagnosed me with IBS and told me to have a nice day. My doctor then referred me to a neurologist to check on my shunt and see if it could be a problem. That neurologist ordered a CT scan and the doctor that saw me said he found nothing. In fact, he said he could see where the shunt was but that it appeared to be removed and treated me like I was some sort of hypochondriac! He said I would know if my shunt was removed and mentioned something of the port being closed.

I was not aware that it had been removed as I had the shunt placed when I was a baby in 1981 and this was around 2006/2007... I had had a c-section in 2000 and nothing was noted or found to my knowledge. I asked my parents and they said that the shunt was never removed.

I left it alone for a long time feeling silly and thinking I was crazy.

Fast forward to 2010 when I had a second c-section and it was then that the dr. found a long tube around my uterus and she said it was free floating. She mentioned that it had not calcified and was easy to remove. She did not mention anything other than the tube. She removed it while performing the c-section (or maybe during the part where she was doing my tubal ligation). To be honest, I was kind of out of it, lol. I never thought anything of it other than a rarity as I looked up information on it then afterwards but didn't know the right words. It has nagged at me though as I have the stomach pains to this day and I thought it was weird that I still have an indent in my stomach and you can feel where the tube was on my neck and along my skull. My doctor says that is from scar tissue that formed around the tube.

I would have continued to think nothing of it, however, I was recently diagnosed with an enlarged ovary. Maybe it's simply worry but when I mentioned to the dr. about the free floating tube and asked if it could be part of the problem or maybe caused an issue he says he doesn't know. They are going to remove my ovary and do an exploratory surgery in January.

What I am wondering is if anyone has known or has any information about tubes migrating to the cavity around the uterus and the ovary? I am personally curious about how it would migrate there. I can't see a neurologist now without a referral and my current doctor says that he would prefer to wait until the surgery is done and refer me to a neurologist then as I am having no other problems other than the same gastrointestinal. I have other health problems but no way to know if they are related or maybe I'm just over reacting. My parents don't tell me anything about the surgery and don't seem to remember much about it being removed. I mean - how can a tube just migrate and the port appear closed over? Maybe I am not fully understanding but I am trying to. It's all very confusing. Any references to where to find out more information or personal experiences to shed light on my current situation and questions would be much appreciated! Thank you!