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Old 04-02-2013, 07:27 PM #11
Lisa14 Lisa14 is offline
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Waylon thanks so much for listening to me! My neurosurgeon keeps telling us his symptoms are due to seizures. Is a revision and an adjustment the same thing? He was in hospital 2/26 and then again 3/3/13 and got adjusted both times. no CT after last adjustment. has apt to see neurosurgeon on April 19th will ask lots of questions!! thanks again for listening to me and We wish you the very best!
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Old 04-02-2013, 07:45 PM #12
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Yes ma'am, not a problem! I have always been amazed at the similarities and differences, in our stories. No, an adjustment takes only about 2 minutes, with the use of a little mechanism containing magnets, my surgeon compared it to a "compass". A revision is a surgery for identifying and/ or fixing problems. Your angst with this whole hydro thing, my last bout, in Feb., almost drove my lovely wife crazy, as this was her first time dealing with it/ me.
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Old 04-02-2013, 07:51 PM #13
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It kinda does drive us crazy cause we wnt to do something to help and can't. your wife sounds like a very caring person, you are lucky to have each other. dean and I have been married for 22 years and this is the most stressful thing we have gone thru. It sucks!!
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Old 04-02-2013, 08:03 PM #14
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It is frustrating, hydro can be quite a journey and yes ma'am, I have an awesome co-pilot on this journey (15yrs). I wished I could give you some clue into the whole seizure side of this thing but, I have no experience with that one. With me, after days, weeks, or months of symptoms with no answers, I really get physically and mentally drained. This go around, I was pretty much useless at work, by surgery time.
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Old 04-02-2013, 08:11 PM #15
Lisa14 Lisa14 is offline
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Yeah he is struggling at work now too especially with these seizures. Seems to be really wearing him down. Luckily he has very understanding bosses and work with him. but I've never seen him this exhausted before. He just got up and said his headaches do get better when lying down. hmmm... wonder if that shunt is overdraining? If the neurologist don't find anything next week I'm calling the neurosurgeon and requesting a CT I think. What are the symptoms of a split ventricle, do you know?
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Old 04-02-2013, 08:28 PM #16
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Yeah he is struggling at work now too especially with these seizures. Seems to be really wearing him down. Luckily he has very understanding bosses and work with him. but I've never seen him this exhausted before. He just got up and said his headaches do get better when lying down. hmmm... wonder if that shunt is overdraining? If the neurologist don't find anything next week I'm calling the neurosurgeon and requesting a CT I think. What are the symptoms of a split ventricle, do you know?
Fatigue was a biggie with me, this time too. I wasn't really ever sleepy per say, just "tired". I had little to no initiative to do anything other than work and lay on the couch, that is so unlike me. Slit ventricles can be associated with overdraining but, they are also a source for several varying opinions and causes. The only symptoms I had and have also heard of were being TIRED, nausea, and the brain splitting headache. I wouldn't go as far to say that's definitely it but, if it subsides when laying down.........that sure raises suspicion. If he hasn't had one recently, I would think that a ct scan may be the first thing the dr will want.
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Old 04-02-2013, 08:31 PM #17
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Dean just joined us and seen you are from Alabama and would like to know if you are a race fan and go to Talladega? I think I will get a CT scan ordered.
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Old 04-02-2013, 08:39 PM #18
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Dean just joined us and seen you are from Alabama and would like to know if you are a race fan and go to Talladega? I think I will get a CT scan ordered.
Yes sir, I love NASCAR but, every year the Talladega race is on the same weekend as one of the bigger motorcycle rallies close to here. My boss lady likes the rallies much better so we skip the race. I am sure the doc would want both but, a set of X-rays wouldn't hurt either. That's how my doc found the break, in the tubing, in my neck. Now, mind you he was the 3rd dr that had looked at the SAME X-ray! One was the on call neuro at a local ER, the other was another ns I had used for a while. After missing that, and basically blowing me off, I got this new doc.........the one that found the break.
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Old 04-02-2013, 08:46 PM #19
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Cool deal, sounds like fun!! We live near St.Louis so we go to Barnes Jewish hospital which has a lot of Washington university md's and students,tons of students That's where his neurosurgeon and new neurologist is at, but maybe we need a second opinion? although we got like 20 at the hospital. I think that's why we r so confused.
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Old 04-02-2013, 08:51 PM #20
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So Mr Dean has had these symptoms every since he was implanted in Oct of 2012? This is one of the stories I feared as soon as my doc told me that he used a programmable on me. I have seen several stories of people who had nothing but trouble with them, the whole time they had them. Prior to this Medtronic, I have always had "fixed" medium pressure valves, and always had good luck with them. I am all for newer technology, it just that you hear so many bad things about them.......
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