I know I have read some horror stories on other sites and that's what scares us so much. dean felt good for about 1 1/2 months after surgery then the headaches started mild and has not gotten severe. took him to ER on 2/26/13 due to confusion. thought we were in the car on our way to Florida for vacation! That's when they did the first adjustment, discharged next day and symptoms still bad and took him back in to ER on 3/3, where they adjusted it again, it is now draining as much csf as possible. headaches, fatigue, of course anxiety all has gotten worse.

It's a blast!!!! Motorcycles are our means of "quality time". Oh mercy, I had the worst experience with a dr, YEARS ago, at a local hospital that was associated with a university. I went to the ER, hoping to be expedited to my regular Neuro. Well, I ended up admitted there and being treated for sinus infection. After being poked and prodded for a week, with no relief, I was discharged and went to my dr. Turns out, my shunt was blocked in the distal cath. Lol. I proved to be a bad example for a whole bunch of student docs at the first hospital. Lol. If you hit a dead end with the appt on the 9th, for Mr Deans sake, I strongly recommend a second opinion.

Hmmmmmm. I can relate to the confusion aspect. By late Jan, of this year, I couldn't complete a thought and / or sentence. I just plain mentally shut down at times. To top it off, I was "ill as a hornet," hated the lights being on in the house, and wanted/ needed absolute quiet. The slightest of loud noises, sent me through the roof. Reckon it's possible, it could need to be adjusted, "in the other direction"?

Ya motorcycles are great, I live in Illinois where you don't have to wear a helmet, not safe but feels sooo great and free. We sold our bike years ago to buy our house and have just not bought another one although the thought crosses our mind at times! I'm thinking He might need a second opinion at a different hospital.

We go to FL occasionally to rallies where they also don't have a helmet law. Feels weird to not have one on! When my pediatric dr retired, I got this other one who said "call if you ever need me"............well, years later I did need him and he blew me off. So, getting a second opinion was the best thing I ever did. My new doc is awesome!

That's great that you have a great md. I really like the guy we go to but it never hurts to get a 2nd opinion.

That's for sure!

Thanks for everything

Yes ma'am! You and Mr Dean take care, I am praying he gets relief soon. Please post an update after his upcoming appt.

I will You take care as well!