one of the first on the planet
 

Not sure about the seizures, I am a guinea pig. I try to keep my neurologist updated with any changes, so that he may pass it on to his colleagues, I know when there is an issue with the shunt, headaches are so bad it makes a migraine seem like a bump on the head, you may develop vertigo. Generally there are two ways to see if the shunt is operating properly, a spinal tap and/or an opthamologist looking in the back of your eyes to see if 5he ventricles are swollen. I have had five headaches in my life, had to have brain surgery for each one, I have has a shunt since 1970.

Wow thats great that you r not having any problems, but you just started having seizures too right? Was it after a revision that you started having them, and do you have a programmable shunt? My husbands is a programmable one and it seems that a lot of people have trouble with those. what type of seizure med do you take and does it make you feel all spaced out? What type of seizures do You have??

one of the first on the planet
 

I have not had to deal with overdraining, however, my understanding, is that if the shunt is functioning properly the ventricles should reduce to their proper size. Ventricles enlarge due to the pressure and fluid build up. I believe that unfortunately if he has a spinal tap and/or has an opthamologist look in his eyes. I have had 5 headaches in my life and wouldn't wish them on anyone, they make migraines look like a bump on the head, generally the best place to be is in a dark room with your eyes shut, however, the issue there is when the shunt is not functioning correctly it can lead to Vertigo, which means it doesn't matter if you're standing, sitting or lying down. Five headaches, five surgeries no issues.:winky:

Thanks Patti! I hope you and your husband the best of luck with his surgery! We will be praying for him. Please keep us posted.

My husband was having severe headaches before surgery, all this other stuff is new since surgery. What symptoms is your husband having other than the confusion? Does he now have hydrocephalus from the Encephalomalacia? I read up on that was not familiar with it. It is softening of the brain tissue right? Have you gotten a second opinion? It may put your mind at ease. Unfortunatly my husband didn't have a choice the fluid was making his ventricles so large it was putting pressure on the brain. He really suffered with headaches the week before his surgery. It was real bad! so his symptoms were relieved for about 2 month, then all this started slowly and eventualy getting worse. We see neurologist Tuesday.
Some people have no problems with their shunt at all. Good Luck. I know its a hard decision to make.

So dean had his first neurology apt for the seizures, going to do a sleep study with a EEG. But he also found possible neuropathy in his legs :( Put him on new seizure meds. So hopefully we find something out before we go to neurosurgeon on 19th. Still having bits of confusion, headaches bad, and extreme fatigue. Not sure if its all related to shunt or seizures??

Patti~What have you decided for your husband? Did he have the surgery yet?

Well dang. I was hoping this appt would reveal more answers for Your husband, as opposed to more test! Hopefully the neurosurgeon can tell you something more on the 19th. The symptoms sure sound like a shunt issue but, I have never had any seizure issues either. Praying for you both.