[koconnor36]

What symptoms did you have at diagnosis (for those diagnosed after they were an infant), and what symptoms do you have before you know you need a shunt revision? In particular, do you feel that you see extra large halos/ fuzz around lights at night or that its particular bothersome?

My story is different. I was diagnosed at 18 during my first semester of college (Fall 2010). I was always an honors student. When I started college I was commuting, and somewhere in the middle of the semester I started getting these weird headaches around the same time every day, as I was walking to my car. As time went on, they would get more frequent and I would get dizzy too. I thought I was hypoglycemic, so I would eat every few hours. I even told my mom and several friends I thought I needed to see a doctor for the dizziness problem from now eating (I was eating plenty - I gained 10 pounds). I also felt what I could only describe as brain fog - not being able to think clearly as usual and just seeming not completely there.

Well, I decided to transfer schools at the end of that semester. I drove up at the end of the semester with my mom for orientation and then I stayed with my friend for another week. The night before my mom left (around Dec 5th) I drove back from dropping her off at the airport and realized my vision was very fuzzy. I also felt the brain fog and a headache. When we drove back from FSU to my house that night (Dec 10th) we decided to go at night, and all I can remember is having a headache the whole way and the oncoming lights and street lights really bothering me. They seemed really big and I think I remember seeing halos around them.

Dec 11th I went to the doctor. He took one look in my eyes and told me I needed an MRI. Diagnosed with obstructive hydrocephalus and had an ETV in February. The papilledemma tipped off my first doctor.

Had relief of headaches for a few months now I get them again.

Now I'm getting them increasingly. I also feel that I see halos and stuff around lights but my mom keeps telling me it's normal. I can't remember what's normal though!!!

I have an appointment with my neurologist tomorrow so we'll see how it goes. Hoping for no more surgery but wishing I had an answer as to my constant headaches and weird vision problems (if it is a problem).