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01-16-2014, 08:59 PM | #1 | ||
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Junior Member
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Agree about the suggestion about over draining. That is what was happening to me before my recent revision and I'm uncertain if I need to "go up a notch" now because I've been having a lot of sinus/ear pressure issues a the end of the day that I had before my revision, but without the foggy feeling. I'm not sure if it is TMJ problems that I caused by clenching my jaw all the time when I was trying to focus or if it is caused by over drainage. I've been for muscle tension more often, especially when I'm on the computer or driving, and noticing that my jaw, neck and face are clenched more often then not and relaxing everything and it seems to have helped a bit but not enough and I'm really fluid sensitive. My neurosurgeon has commented that my pressure setting is high but that could be from being shunted since age 6 months and only got a programmable shunt almost 5 years ago, so my ventricles are used to being really dilated.
Anyway, in addition to helping me "think", I guess the major point is that it is important to know your body and if something doesn't feel right then it probably isn't. It is important to be open minded when talking with a provider you feel is really listening because our body is a system so when something changes, even for the better, something else may get thrown off. I dream that someday it might get easier. =P |
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"Thanks for this!" says: | jroones (01-17-2014) |
01-17-2014, 02:27 AM | #2 | ||
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Junior Member
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When i started having bad headaches i went in i knew something was wrong but would not believe me then i started having seizures too then my doctor went back in chart to find out a small mass was found. I had another mri done to find i had a brain tumor by my spinal cord that's been removed now. I know something is wrong the pain different from the headaches i had just trying to get someone to listen to me is really hard but I'm not going to give up. I was fine when i was laying down to take a nap but now that I'm up my right side of my head kills even neck with blurry vision. I'm so glade i found this support group so i can talk to people that know what I'm going through. Thank you so much for your input I'm still getting used to all this it will be 1yr feb 19 ( 36 yrs old when i got it ).
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