Its the tube that's causing thie pain i had the same thing so i got va shunt put in. I'm having the same problems your having with my balance i sometimes walk like I'm drunk, ear noises, mood swings I'm just sick of it all. all i can say is don't give up keep on the neurosureon until u get help don't take no for answer. until something is done. last time i went in i strated crying I'm in so much pain i can't take it anymore. stay strong you made it this far don't give up. I go back in on fri the gabapetin is not helping i just hope something is done but I'm sure that won't happen.

Thank you I see my neurologist in April. My balance gets so bad I had my doctor give me a four point cane I feel rediculous with it and don't use it as much as I should, but to almost fall over just standing still when people look at me when that happens I just tell them the floor moved on me LOL I will tell the neurologist again about the pain and suggest the va shunt see what he says. When I was first diagnosed my psychiatrist said "so it really is all in your head" and laughed. (he had a weird sense of humor). Now if I can just figure out why my white cell has stayed elevated since the shunt was put in that would be great. It has been elevated for so long now that I don't even run a temp anymore.

Your white count goes up when your body is trying to fight something off i wonder if its trying to fight off the shunt due to it being a object in your head. I'm not a doctor or anything close to it but i think the white count going up has something to do with the shunt. I have not got to the point that i need a cain yet who cares what other people thinkif you fall and get hurt or even bump your head where the shunt is. I know what its like too have people look at you like that i have tremors that get really bad at times that people will look at me and talk about me behind my back. That will never change all you in just walk away i hope things get better for you don't give up and keep fighting.