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Old 04-28-2014, 06:54 PM #1
hydrokelly hydrokelly is offline
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hydrokelly hydrokelly is offline
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Frown Endoscopic Third Ventriculostomy

I was diagnosed with Hydrocephalus when I was.. 14 and turned 15 in the hospital. I got an ETV.. I now suffer from nausea, trouble sleeping, and neck pain.. I am 17 going on 18 and I never thought that those symptoms could have anything to do with my hydrocephalus but reading these boards I have discovered that may not be the case..
My neurosurgeon declared my brain "normal" awhile back.. I'm thinking should I schedule an appointment and express my concerns? I mean I've had these symptoms for a loooong time.
How do I deal with them? My biggest issue is the nausea.
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Old 05-21-2014, 12:09 PM #2
hydrokelly hydrokelly is offline
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Quote:
Originally Posted by hydrokelly View Post
I was diagnosed with Hydrocephalus when I was.. 14 and turned 15 in the hospital. I got an ETV.. I now suffer from nausea, trouble sleeping, and neck pain.. I am 17 going on 18 and I never thought that those symptoms could have anything to do with my hydrocephalus but reading these boards I have discovered that may not be the case..
My neurosurgeon declared my brain "normal" awhile back.. I'm thinking should I schedule an appointment and express my concerns? I mean I've had these symptoms for a loooong time.
How do I deal with them? My biggest issue is the nausea.
****bump****
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Old 05-21-2014, 03:33 PM #3
ginnie ginnie is offline
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ginnie ginnie is offline
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Default Hello Kelly

Glad your neruo said you were doing OK. With regard to symptoms, maybe you better go in and get checked out. Maybe your PCP first? ginnie
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Old 05-21-2014, 10:24 PM #4
pogo pogo is offline
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Originally Posted by hydrokelly View Post
I was diagnosed with Hydrocephalus when I was.. 14 and turned 15 in the hospital. I got an ETV.. I now suffer from nausea, trouble sleeping, and neck pain.. I am 17 going on 18 and I never thought that those symptoms could have anything to do with my hydrocephalus but reading these boards I have discovered that may not be the case..
My neurosurgeon declared my brain "normal" awhile back.. I'm thinking should I schedule an appointment and express my concerns? I mean I've had these symptoms for a loooong time.
How do I deal with them? My biggest issue is the nausea.
ETVs can fail (close) then you'd get symptoms of untreated hydrocephalus. May show up on CT/MRI or however they discovered it before. Call them and push for this being checked out.
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Old 05-24-2014, 01:27 AM #5
pogo pogo is offline
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Default ps

Also get your eyes checked by an opthalmologist, where they dilate the eyes and check the optic nerve. My daughter gets checked every 6-9 months because her pressure has changed a lot (shunted, ETV not an option), we try to make sure it is spaced out well from seeing the surgeon. If your pressure goes too high, your vision is at stake.
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