[Lizzy68]

Hi everyone,

I'm Lizzy, my husband Trevor was diagnosed with hydrocephalus in 2007 and with a blockage in his 3rd ventricle in May 2008. Trevor didn't have an accident and he had no sickness the doctors still don't know what caused it to this day. He had his 1st VP shunt inserted in December 2008 and in May 2012 we almost lost him because the doctors couldn't stop the fluid from building on his brain even after replacing the shunt and relocating it to the left hand side of his head, he has no memory of 16 days of May that year. In 2014 he developed a condition called Dorsal Midbrain Syndrome again, he had this in 2012 as well but it went away. After more surgery in 2014 he now has the Dorsal Midbrain Syndrome permently. I'm 100% sure that there are many people much worse off then us but I'm tired and frustrated and sad and feeling quite lost at this point we've been doing this for 8 years now and have lost everything we live off my $700 carers pension and it's hard. So just needed to vent, and was hoping someone else might have had a similar problem if so please say hi I would love to talk with anyone about Trevor's condition or anything else you might want to talk about. Sorry for the winge!