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Old 09-01-2015, 01:20 AM #1
pogo pogo is offline
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Can you call the hydrocephalus association to find a doc in your area to give you a second opinion? Because bad gait and confusion/memory issues are part of the triad of symptoms for NPH - normal pressure hydrocephalus (3rd common symptom is incontinence).

I don't trust neurologists to read radiology reports properly much less interpret imaging. I trust our neurosurgeon. There's still a lot to interpret that surgeons can get wrong but they know way more, all the ones I've met are imaging experts and either have PhDs in some imaging or are radiology adjunct profs.

If you have NPH, there a way to know by having a lumbar puncture where they remove fluid, your symptoms improve and they put in a shunt, huge improvement in quality of life. If you have some obstruction in your ventricles causing csf problems, you need to get to the right doc, asap. You can also have an ophthalmologist check your optic nerve, papilledema or signs of swelling/pressure might be there, if untreated your sight could be damaged. That's quick way to look for csf high pressure but not sure that's conclusive for your situation.
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Valleydachs (09-01-2015)
Old 09-01-2015, 01:24 AM #2
pogo pogo is offline
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See hydroassoc.org
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Valleydachs (09-01-2015)
Old 09-02-2015, 09:48 PM #3
Merl1n Merl1n is offline
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Quote:
Originally Posted by pogo View Post
If you have some obstruction in your ventricles causing csf problems, you need to get to the right doc, asap. You can also have an ophthalmologist check your optic nerve, papilledema or signs of swelling/pressure might be there, if untreated your sight could be damaged. That's quick way to look for csf high pressure but not sure that's conclusive for your situation.
I have to agree with Pogo with seeing your doc ASAP. I say this because I didn't and things got progressively worse and worse and by the time I did see a dr they needed to operate immediately, emergency surgery.
BUT, in the intervening time I did see an ophthalmologist. They told me there was no indication of raised pressure present and suggested that my symptoms may be caused by scar tissue within the brain from past surgeries. The neurosurgeon was highly critical of the diagnosis of scar tissue. Upon the scan being ordered by the surgeon and performed an issue was seen hence the need for further surgery.

Best of luck with it all
Merl
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