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Newly Joined
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Hi, I’m new here but I’ve lurked over the years. I’m nineteen and have had hydrocephalus and a VP shunt since I was 4 days old. My shunt has been revised twice, once at 4 and once at 8. I was discharged from my neurologist team when I turned 18 and they told me that since my shunt had been working for eleven years, without need for further revision, it is unlikely to need replacing.
I had a bad experience when my shunt was revised when I was eight, as my ventricles didn’t present as swollen on the CT scan and the neurology team basically refused to revise the shunt. It took half a year of severe headaches seizures and vomiting for the neuro team to finally operate; on coming around afterwards they said that if I was left a day later, I would have died. Which is a great thing to tell an eight year old, huh? ![]() But from this experience I get extremely anxious when I have headaches now, I have no neuro team to consult, and my mother is also an anxious woman who would want me in hospital at a sneeze ![]() ![]() I’ve been having headaches for the past few days, they seem ‘different’ to shunt headaches somehow as they’re quite mild but still there. On the occasions they are a bit more severe they are eased by painkillers but don’t totally fade. If they do fade, they come back a few hours later; I go to sleep and wake up with a headache. It’s been ongoing for about three days now. I haven’t vomited, I don’t feel weak and my vision is fine. I live in the U.K. and it has been extremely humid and muggy meaning I have mild hay fever and I’m kinda stuffy. So. Given that you have read that essay... it is unlikely that the shunt is failing, right? It’s definitely just hayfever, and I should stop worrying? I’m torn, sometimes I’m like, ‘it’s definitely not my shunt’ and then I’m like ‘what if it is!’ - someone tell me I’m being an anxious mess and put me out of my misery ![]() |
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