advertisement
Reply
 
Thread Tools Display Modes
Old 09-18-2024, 03:08 AM #1
Kimskam80 Kimskam80 is offline
Newly Joined
 
Join Date: Sep 2024
Posts: 1
Kimskam80 Kimskam80 is offline
Newly Joined
 
Join Date: Sep 2024
Posts: 1
Frown Complex hydrocephalus & eye and ear problems

Hi
I'm new role this forum and from the UK.
I'm daughter has learning disabilities, cerebral palsy, very complex hydrocephalus she is 28 years old and cannot advocate for herself.
My daughter has been shunted since she was 3lb in weight as was premature and for the first 18 years of her life endured over 49 shunts surgical shunt procedures including having 2 shunts in situ and bilateral subtemporal decompressions, she has bilateral slit ventricles and when xray or mri is done it's very difficult to assess if there's a problem with her shunts.
She has been symptomatic for over a year occasional headaches, awful memory (short term) exotropia and now hearing loss complete in one ear- we had a audiologist mirco vacuum her ears 10 months ago and it dud have a accumulated wax she could hear a little better but 3 months after that couldn't hear again.
Took her to the gp yesterday and he checked the ear no wax build up no inflammation either so was referred to hospital ear, nose and throat consultation in the next few days.
* in may I took her to see a neurosurgeon who did state she was very complex and he would like to get an mri done - this happened 3 days ago - the hearing loss and eye problems were discussed and memory issues and severe lethargy were all discussed awaiting mri feedback or plan.
Over the years I've been with her for prolonged periods I have come across people that have become completely blind and lost hearing so these symptoms really worry me.
I I would like to ask if anyone has experienced any if the above at all or generally any advice regards it all
Thanks for your time
Kimskam80 is offline   Reply With QuoteReply With Quote

advertisement
Reply

Tags
complex, ear, hearing, mri, shunts

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Hydrocephalus - New kitkat33 Hydrocephalus 17 07-09-2024 08:21 AM
New in here.... anyone with hydrocephalus? Brett1975 Hydrocephalus 1 12-10-2019 12:19 PM
Is this hydrocephalus? Rdenno Hydrocephalus 0 04-22-2014 11:36 PM
vision problems/brain damage due to hydrocephalus tjlovesjesus Hydrocephalus 4 11-28-2006 08:18 PM


All times are GMT -5. The time now is 11:42 AM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.