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-   -   Anyone out there programmable? (https://www.neurotalk.org/hydrocephalus/3174-programmable.html)

lcms0516 02-13-2011 04:44 AM

Quote:

Originally Posted by mister (Post 22377)
Hi I went programmable in the fall of 2003. I have been wondering how long programmables have been in use and how many here have them. What have your experiences been with them? Does anyone out there know the general ifespan of a programmable these days? All the bionics seem to make it possible for more to go wrong than in the older shunts.

I am one of the older ones in here with a shunt. Mine was first placed in October of 1955. I have had 8 revisions and am doing well considering.

Your input would be appreciated.

Regards
Mister

My first VP shunt was placed in 1968. I had five revisions up to 1976. I haven't had any since then. I did have two sudden headaches last weekend(Super Bowl XLV). But they were due to exposure from a gas leak from the furnace.

Heather1979 05-24-2011 08:23 AM

programables
 
Quote:

Originally Posted by Carol Kerr (Post 738301)
I got a programmable shunt March 2008. No problems so far... other than getting MRI's & bluetooth worries. Both can change the settings... one guy I know it sets off alarms in stores! Best wishes!

Hi been there done that, i'm Heather Hru? i got my first Programable in 2003 as well i don't know anything about store alarms but i will duble check. it's never happened to me anyway, i do know that you can't go through any medle detectors not even being swiped that's what my drs told me i have had mine for awhile and it is tricky please check with your neurosergeon or Neurologist

hydrotexan26 08-02-2011 11:46 PM

Programmable
 
I just had a revision a month ago and my neurosurgeon replaced my fixed VP shunt with a Codman Haskim (sp?) programmable shunt. I had the setting changed 2 weeks ago and now it's draining too much supposedly and causing my headaches and constant tiredness. So, I go back tomorrow to get the setting changed. I was off work 2 weeks after my surgery then talked the dr into going back to work last week. Big mistake!! I have an office job but my mind just wasn't all there yet. I was super forgetful and my thinking was slower. I honestly think this Texas heat is not helping either. It's just been miserable. Normally, i'm constantly on the go and busy but I've been draggy. I want to take more time off to actually take it slow and heal up right but not sure if my dr will approve it. I did so well the last 25 years with the fixed shunt. I hope this programmable one was a good idea.

venusny31 08-07-2011 10:55 AM

went programable in oct 2010
 
Quote:

Originally Posted by mister (Post 22377)
Hi I went programmable in the fall of 2003. I have been wondering how long programmables have been in use and how many here have them. What have your experiences been with them? Does anyone out there know the general ifespan of a programmable these days? All the bionics seem to make it possible for more to go wrong than in the older shunts.

I am one of the older ones in here with a shunt. Mine was first placed in October of 1955. I have had 8 revisions and am doing well considering.

Your input would be appreciated.

Regards
Mister

I had my first shunt put in October 2010 and it was a strata programable shunt. So far it had served its purpose but now I am overdraining. My doc said there is a new one coming out in the fall he wants to put in because you can shut it off and it has more settings. My condition seems to keep changing from high to low pressure so the programable is probably best for my situation. Looking forward to the day I no longer depend on it.

Sheryll 09-01-2011 09:05 PM

Programmable Shunts
 
Hi have had a magnetic shunt since Feb 2010 when I had a shunt blockage. I have had issues since. The setting has been altered up and down on several occasions and I am still suffering headaches. I only have approx. 30-45 mins maximum of concentration at any time. I was told the shunt blockage affected the brain more than they realised but I have been given no real answers to any solution. I also suffer light headedness and not sure whether it due to the shunt or not? Access to my Neuro Surgeon is hard for me as we do not have one in my town and he only comes up monthly.

stevenje 07-05-2012 12:25 AM

Any out there programmable
 
Not anymore, I get totLLY CRIPPLED IF THEY PUT ONE OF THOSE IN MY HEAD, nOW I''M BACK TO A FIXED PRESSURE SHUNT AND THE DAMN DOCTOR PUT THE WRONG ONE IN SO i'M SO WEAK ON MY LEFT SIDE i HAVE TO USE A WALKER AND i'M FALLING ALL OVER THE PLACE. PROGRAMMABLE SHUNTS ONLY LAST ABOUT 8 TO 10 YEARS IF YOUR LUCKY. STICK WITH THE FIXED PRESSURE ONES AND YOU'LL HAVE FAR LESS COMPLICATIONS........

ideebaby 07-05-2012 11:34 AM

I had a programmable shunt placed five weeks ago. I have three settings and have had to be adjusted to all three! The setting the doctors have settled on is too low and I still have a headache! The doctor has mentioned putting in a different shunt with 21 settings so he can dial in a more accurate setting for me. I have tried to just live with the headache I have to avoid yet another surgery... but I don't think I will be able to take it much longer. The adjustments I have had so far have been interesting... like the other person mentioned earlier, you can hear the shunt changing. It's a strange clicking noise. I felt an odd sensation (not painful) when it clicked. Hope this helps.

Ochokid14 07-06-2012 10:55 AM

Programmable Shunts
 
Quote:

Originally Posted by mister (Post 22377)
Hi I went programmable in the fall of 2003. I have been wondering how long programmables have been in use and how many here have them. What have your experiences been with them? Does anyone out there know the general ifespan of a programmable these days? All the bionics seem to make it possible for more to go wrong than in the older shunts.

I am one of the older ones in here with a shunt. Mine was first placed in October of 1955. I have had 8 revisions and am doing well considering.

Your input would be appreciated.

Regards
Mister

Hi! I have had a shunt since I was four and recently had a revision in 2010 because the LP shunt was disconnected and they put in a programmable VP shunt. I had a few more surgeries due to infection, and have been having headaches and stomach ache, which haven't been figured out yet. But the nice part about programmable shunts is that if you are experiencing headaches, you can have the pressure adjusted to make the shunt drain more or less.

Ochokid14 07-06-2012 12:51 PM

Programmable Shunts
 
Quote:

Originally Posted by mister (Post 22377)
Hi I went programmable in the fall of 2003. I have been wondering how long programmables have been in use and how many here have them. What have your experiences been with them? Does anyone out there know the general ifespan of a programmable these days? All the bionics seem to make it possible for more to go wrong than in the older shunts.

I am one of the older ones in here with a shunt. Mine was first placed in October of 1955. I have had 8 revisions and am doing well considering.

Your input would be appreciated.

Regards
Mister

Hi! I have had a shunt since I was four and recently had a revision in 2010 because the LP shunt was disconnected and they put in a programmable VP shunt. I had a few more surgeries due to infection, and have been having headaches and stomach ache, which haven't been figured out yet. But the nice part about programmable shunts is that if you are experiencing headaches, you can have the pressure adjusted to make the shunt drain more or less.

nelder 02-12-2013 02:48 PM

dentist
 
Quote:

Originally Posted by Carol Kerr (Post 738301)
I got a programmable shunt March 2008. No problems so far... other than getting MRI's & bluetooth worries. Both can change the settings... one guy I know it sets off alarms in stores! Best wishes!

What about dental xrays ? Safe ??


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