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10-09-2006, 10:52 PM | #1 | ||
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I can't sit still with this I have to constently "fidet" to get comfy. (I know I am not "plugged up"..... I just know, that's as far as I will go with it. It hurts to take a good deep "belly breath" and exhale.
I'm worried because it's exactly where my shunt pump is... with a margin of 3 or 4 inches. I'm pretty sure the tube ends there, but I am not sure how the catheter/pump is set up. (My neurosurgeon said he put the pump in the belly region and I am not sure where the pump is compaired to the excessive pain I feel.) Needless to say, its a bit nerving. I just can't deal with surgery right now because in 12 days I am going to be out of town nowhere near my neurosurgeon who knows all about me because I am going to be in a wedding, but I am going to be leaving a few days prior, so I am guessing I have a good week left.) I don't have any of the obvious signs somethng is wrong, but geeze... it is not fun, it's painful. |
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10-09-2006, 11:37 PM | #2 | ||
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Junior Member
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You are right - it's not fun. The distal end of your plumbing is probably just poking you in the wrong places. I know exactly what you're talking about. Try to manipulate the end by pressing that area of your belly with a couple fingers, and making small circle motions with your finger tips. That seemed to help some for me. Since my last revision and new plumbing, I haven't had the symptoms you mentioned.
David |
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10-10-2006, 02:48 PM | #3 | ||
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I'll try that! Thanks!
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10-10-2006, 05:14 PM | #4 | ||
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I just thought of something..... while the manipulation really isn't working... I streatched (a few days ago) and rember a wierd sound sort like the sound your joints make when you "pop" them, but it wasn't a "pop" noise. Could that sound I have heard been a tear wich is a probably an obvious sign of desinegration. (I had a friend, who had a shunt that broke into pieces, so I assume it can happen.)
Please let me know, because it still is uncomfortable... |
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10-10-2006, 07:35 PM | #5 | ||
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Junior Member
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Sorry to hear that didn't help. Never heard of shunt disintigration, though I have heard of disconnects. I wouldn't think you would have heard anything though. I don't know what else to say.
David |
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10-10-2006, 10:13 PM | #6 | ||
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Well thank you for caring... I really appreciate it.
Want to know something a little funny...... Your screename reminded me of an old friend I used to have who has hydrocephalus. Cooincodentially, the letters of your screen name are exactly like the letters (exact order of the first and middle name), but I think the number is off if it represents the birth year. But who knows...... it was a long time ago. Have a god one! |
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03-04-2009, 12:38 PM | #7 | ||
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Junior Member
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Oh my goodness sweetie...I know I know...This belly pain is HORRIBLE! I too have had this pain, the last time I had it , it lasted for a whole month and 4 days I NEVER know what to do cause it hurts sooooo bad and is just soooo painfull. My NS also said it has nothing to do with the shunt either...But after finding this site and reading ALL of you that talk of the same exzact pain/problems now I kinda know. But it does still REALLY stink, and I pray that it NEVER comes back but I know it will. We need to find a way to understand why this happens... I wish I knew how to stop it-at least yours is not that bad enough that you can go & be in a wedding- when I get mine sometimes the pain is soooo very bad I have a hard time even walking-Well goodluck to you and hope it goes away soon!
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03-04-2009, 05:10 PM | #8 | ||
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Junior Member
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i am over the moon to be able to say, i had my pain sorted out!!
I had mine everyday since september 15? up til Friday just gone!! i want to know if the pain comes close to contractions, as i cant imagine as more intense pain!! I had my VP converted to a VA shunt on friday at great ormond street, I havent had any stomach pain at all since! *fingers crossed* Sorry but i raise my two fingers up at those NSurgeons that turn round and say its not the shunt, IT IS. If youre happy to go ahead and have a small operation to have it converted then i say go for it, take the risk. If the stomach pain continues, then your NS can turn round and say they were right, but just assuming the problem isnt shunt related is just shifting the cause and really deosnt help, you will just go round and round in circles trying to look for a solution if the shunt isnt taken into consideration! I knew from day 1 of the pain, that it was shunt related. My NS/NC, was sure it was pains from surgery. I knew it was not, weeks went by and he was still shifting the blame of surgery 'healing' pain. Almost 4 months down the line, he werent able to tell me it was healing pain anymore, thats when a more indepth study took place of what was causing the pain. Whenever you have a problem with your health, its strange that we ALWAYS know when we have something wrong with our shunt, we suspect and 9 out of 10 times we are right! Keep pushing on thats all you can do, unless you want to perform the surgery yourself. Goodluck xo |
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05-28-2009, 01:26 PM | #9 | ||
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I wonder if at sometime I did have a VA shunt. I have a unnoticiable scar on my neck (wich may have been placement of the VP at one time... to guide it down or something) and one near my collar bone. The two I know of were VP's.
But this is off topic... I was answering someone. |
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05-29-2009, 02:11 AM | #10 | ||
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Junior Member
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Get your neurosurgeon to tell you where the tube ends and failing that, get your MD to order an ultrasound on the stomach. That's how I found where mine ended. I find I often blame the shunt for pain that's not coming from there, so I suggest you ask your doctor to get to the bottom of this. It could be from the shunt, but then again, it could be something entirely differerent. |
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