Hi all,

Havent been on in months so just thought id pop in again. Oralith is doing fine although she was diagnosed in November with epilepsy. She had had 6 "episodes" from march 07 to november07 where we had to get her straight into a&e. I thought it was the shunt and the drs here told us not to take any chances if at all worried just head straight to hospital. Anyway what was happening was one minute she would be fine, then she would go grey, her head would drop to the left with her eyes turning down to the left, she wouldnt be able to look up, then the vommiting and then she would go unconcious. By the time we would get her to the hospital she would be cranky but doing fine. In november it happened again but she didnt vomit so i went straight to our gp who said she was having an epileptic seizure.

So up to the hospital where they did an eeg and said there was definite abnormal brain activity and she was put on epilim to control the seizures. It is a mild form and since she started the meds she has been seizure free. They are not surprised with this development as they said a lot of people with hydro do develop epilepsy

She also saw her paed last week who said we dont need to undergo more tests. O has low muscle tone in her hips pelvis and legs and they were worried it maybe from some other underlying condition. thankfully with physio she is now crawling and the muscle tone is increasing so some great news there.

One thing i did want to ask. Our surgeon has discharged orlaith from his clinic(he did say any worries ring and we will get an appt to see him asap) as he doubts she would need anymore surgery. He said the shunt should do her for life, obviously as it is man made it can malfunction, we do know that but he said it is very rare. So why is it so many people here seem to have a lot of operations? I hope i dont sound cheeky, im just very curious.