Go Back   NeuroTalk Support Groups > >

Hydrocephalus, CP & the "loss of gray matter"

Reply
 
Thread Tools Display Modes
Old 11-15-2018, 04:32 PM   #11
doreengarrett
Newly Joined
 
Join Date: Nov 2018
Location: Bebington, Wirral UK
Posts: 1
Default Hi newbie here

Quote:
Originally Posted by billsf100 View Post
Hi,
Still a newbie here, looking for straight, honest answers even if they hurt about my 23 yr old son. He was born at 26 weeks with Hydrocephalus, CP, and brain injury. Lately, unexplainable low body temps ALL the time. 94-96 are the readings for the last 2 weeks. Dr's sometimes seem to sidestep our questions, maybe to not worry us. As the years pass, with all the shunt failures, CT scans, and shunt series X-rays, we are told of "Loss of Gray Matter" progression and "Stiffness" inside his brain. He seems to be slowly losing ground. Over the last 2 weeks his Psyc has been trying to wean him off Paxil and then start him on Effexor. He was taking 50mg Paxil per day, gaining lots of weight. Doc reduced Paxil to 25mg per day and he came unglued. Crying, headaches, vomiting and just ill. Wife feared this was shunt failure again so we have gone for another CT and Xrays. Because of our concern the tests were looked at quickly and we were told the only significant change from last tests was loss of gray matter. An honest answer please, will this just keep getting worse with time and make him more disabled? Anyone else walked in our shoes? Thanks for any input.
Hi, I have just joined this site, and have had hydrocephalus since 1970 at age 16 after suffering a ruptured cerebral aneurysm followed by that being clipped and a large AVM being removed. Following development of hydrocephalus, I had a spitz holter shunt inserted which has been revised about 8 times now. I have some physical problems following the bleed, and poor balance, visual problems and very poor short term memory and poor concentration from the hydrocephalus. I have therefore had hydrocephalus now for 48 years and take each day as it comes. I was told there should be no reason why I shouldn't live a normal lifespan and certainly hope for that, but who knows for sure what fate has in store for any of us. I'm not a medical person, but was told that someone with hydrocephalus will always have a slightly raised IC pressure. Possibly the loss of grey matter could be a consequence of that? Not sure if that is true. God Bless you and your family.
doreengarrett is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
"The Bipolar Handbook" & "Horror Movie Hallucinations" Nathan1097 Bipolar Disorder 17 12-20-2007 06:41 PM
Boosting Our Gray Matter Stitcher Parkinson's Disease 0 08-17-2007 11:54 AM
"Instant Karma" - the Voices of Apathy -"Coulter and Limbaugh" lou_lou Parkinson's Disease 0 11-02-2006 05:20 PM


All times are GMT -5. The time now is 09:41 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych CentralMental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2018, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2018 DragonByte Technologies Ltd.

All posts copyright their original authors • Community GuidelinesTerms of UsePrivacy Policy