Hi,
I used to post on CN on the other braintalk but have also posted here long ago. My grandson has a VP shunt. His name is Kody. We are going to Disney World in November with Make a wish and I was wondering if there are any issues with VP shunts or any shunts and flying. We will ask the neurosurgeon closer to the time we are going but thought I could get some insight here.


Kody had a hemispherectomy done at 11 weeks old for a intractable seizure disorder called Hemimegalencephaly. He acquired hydrocephaly from the brain surgery and had an emergency shunt put in at 6 months old. (he is 4 and has a twin sister). He has had no revisions or infections. (Thank goodness!) He is also seizure free and med free. Not talking or walking yet but we stay positive that he will. He cognitively does pretty good. Here is his webpage in case your interested.
www.caringbridge.org/pa/kodyc

Thanks! Randi