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Old 06-19-2008, 07:08 AM #1
Brad77 Brad77 is offline
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Brad77 Brad77 is offline
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Default My Shunt has detachted

Hi,
I am wondering if anyone has come across or has had their shunt detached...Basically i've had my shunt in for 25 years, had it extended about 15 years ago and over the past 8 years it has come apart from the the top point(near my ear) and is now about 5cm down my neck....The bottom part has a kink due to this seperation and i have a noticable lumb on my neck. I have been to my doctor and he didnt seem to worried, but also didnt seem to interested...just wondering if this has happend to anyone else and what may of been done, if anything??

Cheers Brad
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Old 09-28-2008, 11:22 AM #2
jadiee-x jadiee-x is offline
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jadiee-x jadiee-x is offline
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Default shunt disconnection

this does indeed sound serious...sounds like a damn right ignorant doctor to dismiss you like that. grr.

i had a disconnection from the valve in my chest on my tubing, although this went unnoticed as i was well, they were very concerned when i slipped into a coma!! thats the only way they found out in the end as they werent too concerned before.

a shunt series would confirm the connection of the shunt and tubing, a CT scan will reveal any pressure or fluid build up...if any. go get these done =D

i would go and get a second opinion and a third if necessary, a disconnected is very serious as the fluid will build up and build up until the nerves on your brain get squished and your optic nerves get damaged resulting in permanant disability and blindness ...i may well be going overboard here but its all possible, i think its fair to say the second and third opinions sounds more apetising than the horror that could come of a shunt disconnection eh? =]

good luck xx
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