advertisement
Reply
 
Thread Tools Display Modes
Old 09-10-2006, 09:07 PM #1
Jennifer Jennifer is offline
Junior Member
 
Join Date: Sep 2006
Location: Kentucky
Posts: 74
15 yr Member
Jennifer Jennifer is offline
Junior Member
 
Join Date: Sep 2006
Location: Kentucky
Posts: 74
15 yr Member
Default My name is Jennifer I am 22 year old with hydrocephalus, just trying to make friends

Hey

My name is Jennifer, I am just trying make friends, I have had hydrocephalus since I was maybe a month old and don't have very many friends. I was told when I took my IQ test that my scores were below mental retardation and I don't think people really understand how hard it is for us. If anyone wants to chat just send me a message. I am a nice going church girl, loves sports, played soccer, had a hard time because of the shunt. Graduated High School, can't go to college because of the mild mental disabililty, but I am a cashier and my neurologist didn't think I could do that. Feel free, to ask me any questions.
Jennifer is offline   Reply With QuoteReply With Quote
Old 09-10-2006, 09:29 PM #2
LIZARD LIZARD is offline
Member
 
Join Date: Aug 2006
Location: RI
Posts: 595
15 yr Member
LIZARD LIZARD is offline
Member
 
Join Date: Aug 2006
Location: RI
Posts: 595
15 yr Member
Smile

Welcome, Jennifer!

I know you'll love being here. We are from all walks of life, and we all understand what it's like to go through the day-to-day with the misunderstood dx of hydro (or love people who do). I am closer to 40 than I'd like to admit (less than 2 months to go ), and like you, I was dx'ed in infancy. After a cluster of shunt surgeries prior to kindergarten, along with some seizures (which I still have, on occasion), I have had only one--26 years ago last month! I am college-educated, married (mostly happily) for 16 years, and I have two awesome kids. My son's autism is actually the most trying challenge I deal with.

Please pull up a chair and jump in at anytime with any questions or comments. We're glad to have you!


LIZARD
LIZARD is offline   Reply With QuoteReply With Quote
Old 09-10-2006, 09:36 PM #3
Jennifer Jennifer is offline
Junior Member
 
Join Date: Sep 2006
Location: Kentucky
Posts: 74
15 yr Member
Jennifer Jennifer is offline
Junior Member
 
Join Date: Sep 2006
Location: Kentucky
Posts: 74
15 yr Member
Default

Hey Liz, this is Jennifer, just wondering does it cost anything to be on here?
Jennifer is offline   Reply With QuoteReply With Quote
Old 09-10-2006, 09:55 PM #4
MegNJaxMom MegNJaxMom is offline
Junior Member
 
Join Date: Aug 2006
Posts: 41
15 yr Member
MegNJaxMom MegNJaxMom is offline
Junior Member
 
Join Date: Aug 2006
Posts: 41
15 yr Member
Default

Hi Jennifer! It is nice to "meet" you. I am Heather, mom to a daughter with hydro since before she was born. You have found an excellent, and yes FREE!, website for info, friendship, and fun. We come from all over the planet, all different situations, and all abilities. But, we all have more experience than we want, so feel free to ask questions, tell us happies, cry, scream, whatever... we're here. Welcome to the "family" and I hope we all get to know you better!
MegNJaxMom is offline   Reply With QuoteReply With Quote
Old 09-11-2006, 02:57 AM #5
Spiritgal Spiritgal is offline
Junior Member
 
Join Date: Aug 2006
Posts: 21
15 yr Member
Spiritgal Spiritgal is offline
Junior Member
 
Join Date: Aug 2006
Posts: 21
15 yr Member
Default

Hi Jennifer! Welcome to our happy hydro home! I'm Jordan, I'm 32 and developed hydro as an adult when I was 26 with no known cause. I have my second shunt in, which was fitted 6 weeks ago. It's causing me problems regarding pressure right now...it's either too high or too low but I can't tell which so I'm back off to hospital this week or next. This place is a pot of gold because not only do you have people from all walks of life with all forms of hydrocephalus, they're all mega-friendly and no one minds if you just need to rant and get things off your chest from the frustrations we all go through from time to time. Good on you for getting your job and proving them wrong!
Spiritgal is offline   Reply With QuoteReply With Quote
Old 09-13-2006, 11:45 AM #6
Spiritgal Spiritgal is offline
Junior Member
 
Join Date: Aug 2006
Posts: 21
15 yr Member
Spiritgal Spiritgal is offline
Junior Member
 
Join Date: Aug 2006
Posts: 21
15 yr Member
Default

Hi Jennifer!

Nope, I go to the hospital next Monday for a pressure increase. My neurosurgeon reckons I am still overdraining slightly, and my symptoms do seem to reflect that. Do you ever get affected by weather? I mean, if it's starting to get cloudy or rain is coming in, do you ever feel worse? I seem to be hyper-sensitive to weather changes with this new shunt. Only had it in 7 weeks so I'm still getting used to it!
Spiritgal is offline   Reply With QuoteReply With Quote
Old 09-11-2006, 11:01 AM #7
Jennifer Jennifer is offline
Junior Member
 
Join Date: Sep 2006
Location: Kentucky
Posts: 74
15 yr Member
Jennifer Jennifer is offline
Junior Member
 
Join Date: Sep 2006
Location: Kentucky
Posts: 74
15 yr Member
Default

Hey spiritgal

This is Jennifer and thanks for writing, like I said I am just trying to make friends that have hydro because I feel alone. I have a mild mental disability and can't go to college, I work as a cashier and no one thought that I would do that, I love sports and meeting new people like me.

Talk to you soon
Jennifer is offline   Reply With QuoteReply With Quote
Old 09-11-2006, 06:32 AM #8
LIZARD LIZARD is offline
Member
 
Join Date: Aug 2006
Location: RI
Posts: 595
15 yr Member
LIZARD LIZARD is offline
Member
 
Join Date: Aug 2006
Location: RI
Posts: 595
15 yr Member
Smile

Quote:
Originally Posted by Jennifer View Post
Hey Liz, this is Jennifer, just wondering does it cost anything to be on here?
Absolutely nuthin, nada, nyet. Enjoy!!! We are all a supportive, knowledgeable bunch here and glad to help with anything we can.



LIZARD
LIZARD is offline   Reply With QuoteReply With Quote
Old 09-11-2006, 10:59 AM #9
Jennifer Jennifer is offline
Junior Member
 
Join Date: Sep 2006
Location: Kentucky
Posts: 74
15 yr Member
Jennifer Jennifer is offline
Junior Member
 
Join Date: Sep 2006
Location: Kentucky
Posts: 74
15 yr Member
Default

Hey Lizard

Do you have any disabilities, did you go to college? I can't because of my mild mental disability, but I am a friendly person, and I am happy that you have wrote me.
Jennifer is offline   Reply With QuoteReply With Quote
Old 09-11-2006, 11:37 AM #10
LIZARD LIZARD is offline
Member
 
Join Date: Aug 2006
Location: RI
Posts: 595
15 yr Member
LIZARD LIZARD is offline
Member
 
Join Date: Aug 2006
Location: RI
Posts: 595
15 yr Member
Smile

Quote:
Originally Posted by Jennifer View Post
Hey Lizard

Do you have any disabilities, did you go to college? I can't because of my mild mental disability, but I am a friendly person, and I am happy that you have wrote me.
Yeah, I have some mildish issues. I did go to college and graduate, but I learned things while I was there that most people never learn in a lifetime...and I don't mean academic. I experienced a severe and lengthy reaction to a seizure med that taught me all about what I'm made of and changed my life completely. Even though it was 20 years ago, I will never forget what it was like. It went on for nearly three years, and 16 1/2 years after graduating dead-last in my class, I still don't know how I survived.

In many ways, though, positives came out of it. I learned to stand up for myself against arrogant, idiotic doctors. I learned how to determine what meds were okay for me to take, and which ones aren't, and it prepared me well for dealing with my son's autism.

I also finally got documentation of my learning disabilities after years of humiliation over failing tests and forgetting things I should have recalled easily. As difficult as those years were, I learned a lot about hydro, epilepsy, and how to manage my health and learn to be independent. My life is very good now.


LIZARD
LIZARD is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 06:23 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.