I was diagnosed with Pseudo Tumor Cerebra Jan. 2014. They shunt was placed a few days after that.. I have gotten back some eye sight from the pressure being on my optic nerve so long but it is not how it use to be. It has been almost 2 years sense the placement and I am now noticing a increase in headaches over the last week. My neurologist told me I might wold have headaches for the rest of my life and I would have them once in a while after my shunt but here lately they have been so often I have took notice to the problem. Has anyone experienced this? If so what should I do or what helped you? Thanks so much

When do you tend to have the headaches?


Sent from my iPhone using Tapatalk

Hello
Im new to this forum, is anyone still posting information on here. I would love some feedback

Hi there I am 43 years old now. I was diagnosed with hydrocephalus first when I was 11 then when I was 17. When I was 11 specialists put me on fluid reducing steroids for 6 months and told me to have a nice life. The headaches started getting really bad when I was 15 but when I would ask my family physician he would tell me to relax and not stress. The headaches were so bad I would often have nausea and vomiting to relieve some of the pressure. I finally managed to get my doctor to refer me to a specialist and then it was a race to get my first shunt inserted before I would suffer irreversible brain damage from over swollen ventricles. The doctor promised me that having a shunt would cure my intolerable headaches but he was wrong.