Vp shunt= sad

POWERZOO · 09-26-2010, 08:09 PM

I do not see postings from anyone other than those that have shunts themselves so I hope that I do not offend anyone by being the one to share my son's problems and ask for advice. My son had spinal meningitis at 5 days old. They told me he would not make it through the night, his spinal fluid looked like cloudy water. But he did make it, through that and the next year that was spent in and out of Children's Hospital (mostly in). He was shunted, revised, revised, infected, shunted externally, and revised again. Then we went four blessed years. Another revision, and seven more years. This revision did not go as well at age 12. He was revised, and the shunt failed within six hours. The doctors did not want to believe it, refused to do another CT until I became hysterical. They did do CT and took him immediately to surgery. At that point he was so sick, he also suffered a collapsed lung. He was brought out on a ventilator for 3 days. When we were released from the hospital that time I prayed, and prayed, that it would be the last. Now 18 years later at age 30 the cycle has started again. He began getting headaches in late June that medication was not stopping. In the second week of July we took him to the local hospital. His vision was so bad that he was needing help to walk by his wife. They did CT and said there was nothing wrong except for a new diagnosis of migraines. A week later his wife called me at 3:30 am to tell me he was projectile vomiting. I met them at the same hospital and the doctor did not seem concerned. They did another CT and while waiting for it to be read, (two hours plus) the doctor never came back. At 6:00 a.m they came and told us they wanted to fly him out immediately to hospital 60 miles away. When I asked why the doctor had not been concerned before he told me that with all the shunts he had he thought one of them had to be working. He never read the report that he had only one functioning shunt, the rest were catheters left from previous surgeries that could not be removed due to bleeding risk. I do not know how this disease can be so dismissed . He had surgery that day and was crawling on his hands and knees to the bathroom from abdominal pain four days later. Back in ER 5 days after discharge,actually questioned rudely by ER doctor as to why we are there. Who told us to come? Best yet, told him to quit taking his pain meds, that was probably the problem. Back home, stomach pains and then the headaches again. Back to clinic three more times. CT fine, everything's ok. Getting sicker/sicker. I take him back to hospital and now we just had surgery again. SLIT VENTRICLE SYNDROME. How are we supposed to know what's wrong when the people that are supposed to know don't. No matter how old he is, he is my son, and any knowledge or support I can learn from this website is a true blessing. Thank you for posting your medical issues, sharing knowledge makes us stronger and more prepared, and a lot less alone.

TMOORE · 10-17-2010, 09:56 PM

Quote:

Originally Posted by glittergirl

Hello everyone

I am new on here and sooooooooo Happy to of found this site. I have had a vpshunt put in on Aug of 2008. it has been about 6 months since I have had this shunt and dont get me wrong , my pressure problem is all gone BUT, I have had soooo many problems since surgery. It took me a long time to recover for I had sooo much pressure in my head that it was the most my Brain Surgen has EVER seen! NO wonder why I was REALLY sick for 4 years- I lost a little bit of my vision ( well its not the same) because of all the pressure on my optic nerve. It's only been 6 months almost 7 and I feel that I am FINALLY getting back to normal, EXCEPT of all the HORRIBLE odd pains I have been having since surgery. It started about 2 months after surgery...I started to get this HORRIBLE MOST HORRIBLE abdominal pain- I have been threw EVERY test MRI/Cat Scan- ETC. and NO ONE found any problem with me or my shunt. So ok...what do I do? It got sooo bad at times I could'nt even walk-everyone said it was NOT from my shunt blah blah blah...I found this site yesterday and read atleast 5 stories of people that has had the SAME abdominal pain and EVERYTHING just like me....OMG Thankyou I'm not crazy-LOL.
So time has gone by and I have had that belly pain happen atleast 6 different times to me and the longest that it lasted was from the 28th of December all the way to the 1st of February (this year) yeah, HORRIBLE

then for 4 days I was great then out of the clear blue I felt like I was hit by a bus, and got this most HORRIBLE headache that I have EVER had- and believe me I have had CONSTANT headaches REALLY bad headaches for over 4 years straight! This one was almost the worst of them all! I ended up with some neck pain and a temp of 101. I went into the hospital about 3 days later-(cause you know how you hope it will just go away) well it didnt, it actually got worse

I went back into the hospital cause the first time they just thought it was a bad sinus problem- (yeah, I DONT have or EVER had sinus problems)but whatever...and the second time they thought -well didnt know what to think-they called my brain surgen and the next day I was to go get a shunt tap- so I did . It was crystal clear!!! but, I got a phonecall at 8am the next morning saying that my shunt is infected and I needed to go in and talk with the Dr. > OMG I cried for 2 days for I am STILL recovering how can this be? My hair is just starting to grow out etc

I thought I was out of the "infection period". ??? Anyways, I was in the hospital for 4 days they did test after test took all kinds of blood /catscan/MRI/ and so on....Here, NOTHING grew in my blood cultures or anything I stopped having a temp and just started to feel great..They said that my spinal fluid must have just had some bacteria on it from the skin or something? And I still had a bit of the neck pain with the headache but NOTHING like I had felt that week. I REALLY felt wonderful! So I got sent home on Valentines Day morning- I actually got cleaned up and went out for the whole day I felt so good! I even got engaged that night

but anyways, a whole week went by and all was the best I have EVER felt since ,well, since I'd say I felt in 5 years...Then the beginning of this week I woke up and was like oh no...and the hardcore headache was back with the temp and neck pain! so I went into the hospital again the next day...Of course when it came to my temp it was normal(Thankgod) they took my blood and that was it! they said my blood was fine- my white blood cells a little up (just like before) nothing changed. so NO signs of infection or anything so they sent me home. It has been going on 5 maybe 6 days now and the headache are still here with body aches (Flu feeling) with no temp. I go into my Brain surgens office this Thursday-I am sure he's going to want to do another brain tap

Ok...so, I dont understand? I thought I was going to feel better and FINALLY back to normal and live a great healthy life??? Why have I been having sooo many problems since this shunt has been put in me? This is NO WAY to live a life!!! I am sooo mad and sooooo frusterated that i dont know what to do! I am sooo scared to have to go threw "another" surgery and all that. I have read that ALOT of you have had more than one surgery- Why? wasnt this sapossed to make us all better? That is what I was told and there would be NO LIMITATIONS! Has ANY body else out there still having headaches? Is there anyone out there with a good story after getting your shunt? PLEASE write to me for I am soooo worried that my life will be like this forever- Will it? or is it just because my shunt is sooo new??? I cant take it and its REALLY taking a tool on my fiancee and the people around me but especially me...I am getting REALLY depressed- I am only 36 years old and am planning a wedding and a family someday soon but how can you plan anything when you never know how you'll be feeling? aHHH I REALLY NEED PRAYERS! ALL I WANT IS TO FEEL BETTER for longer than a couple of days...PLEASE write and tell me your stories even if they ar bad ones. I am glad to of found people who are going threw what I am and feel what I feel

Please send me your stories-I Thankyou*

I am glad i found this site. I had vp shunt Dec. 08 and have been in pain since. Abdom pains have gotten easier to deal with but still stop me in my tracks bent over in pain time to time. But my vision and headaches are ruining me and my life. My asshole NS sees me for 10 seconds after a head ct or mri and tells me everythings fine, that i needed to see a psych b/c of anxiety and depressn, i took his advice, maybe i was doing this to myself. i admit it was hard on me mentally, i was a 33 now 35 yr old firefighter married with new child. Well, i am now fine mentally and no longer take any meds for it , which i thought was contributing to headches. However I still have unbearble headaches, vision probs. abdom pain. wtf do i do now? having found this site i see others have the same issues. At least im happy im not crazy.

kl2568 · 12-26-2010, 07:51 PM

I know it can be tough dealing with a shunt system but it will get better. I have had 11 surgeries before by 5th bday and then i was good for 4 years and had to get it revised at the age of 9 since I outgrew it and have been problem free for over 11 years now. I get headaches and neck pain that bother me from time to time but nothing too serious that the doctors say requires surgery. I am still going on with the same shunt and everything is good. It takes time to heal all wounds and pains but it will get better. I am also glad that I have found this site because I feel as if I can not relate to anyone in my area since im not comfortable talking about it but I hope these words will help you and give you more hope that things will get better.

DrMargi · 02-22-2011, 04:30 PM

I don’t know where to begin.I am 31 y.o,medical student from Greece.Was born with congenital hydrocephalus and a VP shunt was interted when I was 15days old.Since then I never had any problems as a child.Well,when I was 11 I had my first epileptic seizure and since then I’m on medication.As I said,I am a medical student,I attend med school,study as much as I can,had real difficulty in accepting epilepsy but since med school I realized it’s just another condition and I must learn to accept it and live with it.So far so good.In July of 2008 I left for Prague.Czech Republ.as an exchange student.My academic work there was successful.I passed a respected number of courses but a few months before I finish the program I started having enormous headaches that made me unfunctionable although I had to finish my clerkship…..I visited there 3 neurologists and 1 neurosurgeon and the diagnosis was cervical spine syndrome,I was wearing a special neck collar but didn’t do anything.I kept going but nobody could tell me what was wrong.All these after 3 brain CTs and 1 brain MRI.Till today I am not sure if they saw something in there but couldn’t express it in English…Anyway,I came back home.headaches were worse and I already had began to lose my vision of my right eye and when I went to my eye dr he urgently reffered me to the neurosurgeon beacuse the shunt was dead and ICP and IOP was sky high……..resulting in optic disk edema and loss of vision from the right eye.I had the 1st VP shunt replacement in 10/2009.Next thing I remember was March of 2010,waking up at a bed in neurosurgery department with left hemiparesis and strong vertigo episodes.What happened in between?The 2nd shunt worked about 1month and then started malfunctioning because it was defective.I ended up in ICU in coma for 10days,my heart stopped and they had to revive me and use mechanical respiratory support and then 2months and 20days at the neurosurg.department………I don’t remember anything that had happened,I actually have a gap of 1year,I only remember fragments and now and then I have some flashes of memories.The surgeon used another VP shunt but that one didn’t work at all and now I have a hakim-medos vp shunt.A 3rd one which so far is working.I have a constant buzz in my ears,which they say it’s normal.Obviously I haven’t gone to school since 2009.My right eye was too damaged by the pressure to recover,the left eye is working ok but I can’t read without bright light or if the fonts are too small.As for my psychological status?That’s another issue……..I am depressed,miserable,moody,aggressive to my family as if it;s their fault.
I had to go to rehab to make my leg stronger but still walk with a walking aid.My hand is ok,although a little weakened but nothing serious.I feel……I don’t know how to describe it.As if my whole world was taken from me……One min I was happy traveling,studying and the other I am in my house,stuck,not able to go to school,to go out by myself,to read…At the beginning,after I was discharged and returned home I couldn’t sleep.I had nightmares that I was waking up in a blood bath with the shunt hanging out of my head and I was trying to hold it,a couple of times I’ve dreamed that I am vanishing but still in my house and my family and friends can’t see me……I really expect everything now…….I don’t afraid of dying……..No,since I won’t feel it.I am only afraid that something like that might happen again and lose my memory again and that is really painful.I am so eager to go back to school,continue my life from where I left it.The last 2 days I;ve been trying to read a book but the fonts are so little that make me dizzy and tired and make me doubt whether I am ready to go back to school……
I think I said enough for introduction……….As Dr Irvin Yalom(prof.emer.of psychiatry in Stanford and my favorite writer…..If we acknowledge the universality of our condition things are easier…..a bit….since we are not alone,other people might have the same experience,might dealt with the same issues and could help us overcome our issues)
I was also informed what I have a genetical condition called Arnold-Chiary malformation but not the severe type and agenesia of mesollobium
I apologize if my long text tired you.Feel Free to contact me.it would be nice to feel someone really knows what I'm going through

p.s:I too have neck and abdominal pains but after xrays/ct scans nothing is wrong..........but the pain is still there.

jlane24 · 03-04-2011, 03:37 PM

Quote:

Originally Posted by miche27bbd

What dosage of diamox were you on? I have been put on diamox and they are hoping that will bring me back to normal rather than putting in a shunt. I started at 500mg a day, now i'm on 1000mg. I'd like to know what they consider a large dose. I get almost zero information from my neurologist.

I was taking 4000mg a day before my VP shunt was placed. 2000mg in morning, 2000mg at night.

Bhavana · 03-05-2011, 02:59 PM

I have a 13 yrs old with shunt and may need a revisions since her MRI is off.I was so glad to read U'r post that one can outgrow the need for shunt.please let me know how to find if a shunt is not needed anymore .like all mom's with kids with shunt it would be a blessing to find out that my kid might not need one or even that it's possible.

God Bless
Bhavana

kaprina0510 · 09-28-2011, 02:12 AM

i know what you feel like i have the same problem. i don't know what to do neither and i'm 32yrs old.

jacquelines *chi* · 05-16-2012, 01:30 PM

I too had the same probs.. Psuedo tumor... Got my shunt.. Had probs with the first.. (line was kinked) Had another surg... Ended up with a shunt infection that almost killed me.. Had part of my abdominal muscle removed due to infection.. I also have a nice scar where the had to open me up to clean my organs out.. BEFORE my shunt I only had headaches.. Was told i would only be off work for 2 weeks for the operation.. I almost start laughing every time i think about the promises in the beginning by the neuro surgeon... (BTW You can fire your neuro surgeon.. and get another one. I have a wonderful one now) I have spent the last year trying to walk and talk normal.. I finally can speak normally.. I am currently going thru physical therapy to walk normally.. I did the pain pills for two years, and you know what??? I rather deal with the pain and have complete control of my mind.. I am TAKING my life back no matter what.. We have all been delt a really bad hand in life, by ending up with shunts.. But the headaches do get better.. I rather look at all the past surgeries, and pain i went thru as a "hurdle".. I LIVED thru hell, and i am still alive.. I spent to much of my life recovering, and i will learn to live life to the fullest regardless of my shunt.. I wish everyone the best, and i will keep you in my prayers.. The best advice i can give is teach yourself to fight the pain by doing something you love.. I have noticed, when i am in my flower garden i forget the pain.. When i am looking into my grandsons eyes, and enjoying his smile,, I have no pain.. Please everyone live life to the fullest..

Quote:

Originally Posted by DPD235

I was 29 yrs old when I was diagnosed with Chairi Malformation. I had the decompression surgery for this on July 9th 2008, to relieve chronic headaches, blurred vision, loss of hearing in left ear, and mild blackouts. Surgery was successful and I was recovering faster than expected, when on Aug. 30th 2008, I became extremely ill and was rushed back to the hospital with to diagnoses, (pseudo tumor cerebra, and spinal meningitis). None of my doctors could confirm either condition, and due to the large amount of CSF fluid building around my brain, my neurosurgeon placed a Lumbar shunt in my back to relieve the pressure. He stated he did not believe I had developed hydrocephalus due to my ventricles,(fluid chambers), not being enlarged. It took me a long time to recover from this surgery due to the increased pressure my brain put on my optic nerve, causing my eyes to be crossed so bad they did not expect them to return to normal and leaving me with extreme double vision. A few months later my normal vision was restored, but the lumbar shunt only drained while I was standing, making it impossible to sleep. This led to the removal of the lumbar shunt and insertion of a ventriculoperitoneal shunt on Oct.1st 2008. This seemed to be the answer, and was working fine except for the intense lower abdominal/pelvic pain. I woke up in the recovery room with this pain and was told it would go away in time. Well like many of yawls posts I’ve read, this is where I started to feel like I was crazy! About a hundred tests, CT scans, MRI scans, ER trips with multiple DR’s later, I was told by my neurosurgeon that he could no longer help me and I was going to have to live with the pain. This led my wife to find me a new neurosurgeon, and on Feb.4th 2009 I had a shunt revision to place the tubing in another location in my abdomen, with no improvement. This led to yet another shunt revision on March 4th 2009, this time changing it to a ventriculopleural shunt. It was amazing that as soon as I woke up from this surgery I had no more abdominal pain. Since then I have had off and on sharp stabbing pains in my right side chest cavity, and now I am having intense headaches/migraines behind my right eye, and what I believe is directly under the shunt pump in my head; also causing slight double vision when migraine is at its worst, and severe sleep ad mea! My Neurologist has only tried to treat these symptoms with sleep aids, and pain pills, which do not really help much, and time for my body to adjust to the shunt. I guess my question to you ‘all is what do I do now? Am I supposed to live on pain pills and sleep aids for the rest of my life? How much time does my body need, and if it is adjusting why are my symptoms getting worse? I am a Police Officer and am finding it extremely hard to do my job with these symptoms! I have not contacted my neurosurgeon since last shunt revision for fear of having to have another surgery, and possible losing my job! I would greatly appreciate any help or advice in this for I believe I’m at a standstill! Thanks in Advance!!

LElsbernd · 06-16-2012, 12:44 PM

Quote:

Originally Posted by glittergirl

Hello everyone

I am new on here and sooooooooo Happy to of found this site. I have had a vpshunt put in on Aug of 2008. it has been about 6 months since I have had this shunt and dont get me wrong , my pressure problem is all gone BUT, I have had soooo many problems since surgery. It took me a long time to recover for I had sooo much pressure in my head that it was the most my Brain Surgen has EVER seen! NO wonder why I was REALLY sick for 4 years- I lost a little bit of my vision ( well its not the same) because of all the pressure on my optic nerve. It's only been 6 months almost 7 and I feel that I am FINALLY getting back to normal, EXCEPT of all the HORRIBLE odd pains I have been having since surgery. It started about 2 months after surgery...I started to get this HORRIBLE MOST HORRIBLE abdominal pain- I have been threw EVERY test MRI/Cat Scan- ETC. and NO ONE found any problem with me or my shunt. So ok...what do I do? It got sooo bad at times I could'nt even walk-everyone said it was NOT from my shunt blah blah blah...I found this site yesterday and read atleast 5 stories of people that has had the SAME abdominal pain and EVERYTHING just like me....OMG Thankyou I'm not crazy-LOL.
So time has gone by and I have had that belly pain happen atleast 6 different times to me and the longest that it lasted was from the 28th of December all the way to the 1st of February (this year) yeah, HORRIBLE

then for 4 days I was great then out of the clear blue I felt like I was hit by a bus, and got this most HORRIBLE headache that I have EVER had- and believe me I have had CONSTANT headaches REALLY bad headaches for over 4 years straight! This one was almost the worst of them all! I ended up with some neck pain and a temp of 101. I went into the hospital about 3 days later-(cause you know how you hope it will just go away) well it didnt, it actually got worse

I went back into the hospital cause the first time they just thought it was a bad sinus problem- (yeah, I DONT have or EVER had sinus problems)but whatever...and the second time they thought -well didnt know what to think-they called my brain surgen and the next day I was to go get a shunt tap- so I did . It was crystal clear!!! but, I got a phonecall at 8am the next morning saying that my shunt is infected and I needed to go in and talk with the Dr. > OMG I cried for 2 days for I am STILL recovering how can this be? My hair is just starting to grow out etc

I thought I was out of the "infection period". ??? Anyways, I was in the hospital for 4 days they did test after test took all kinds of blood /catscan/MRI/ and so on....Here, NOTHING grew in my blood cultures or anything I stopped having a temp and just started to feel great..They said that my spinal fluid must have just had some bacteria on it from the skin or something? And I still had a bit of the neck pain with the headache but NOTHING like I had felt that week. I REALLY felt wonderful! So I got sent home on Valentines Day morning- I actually got cleaned up and went out for the whole day I felt so good! I even got engaged that night

but anyways, a whole week went by and all was the best I have EVER felt since ,well, since I'd say I felt in 5 years...Then the beginning of this week I woke up and was like oh no...and the hardcore headache was back with the temp and neck pain! so I went into the hospital again the next day...Of course when it came to my temp it was normal(Thankgod) they took my blood and that was it! they said my blood was fine- my white blood cells a little up (just like before) nothing changed. so NO signs of infection or anything so they sent me home. It has been going on 5 maybe 6 days now and the headache are still here with body aches (Flu feeling) with no temp. I go into my Brain surgens office this Thursday-I am sure he's going to want to do another brain tap

Ok...so, I dont understand? I thought I was going to feel better and FINALLY back to normal and live a great healthy life??? Why have I been having sooo many problems since this shunt has been put in me? This is NO WAY to live a life!!! I am sooo mad and sooooo frusterated that i dont know what to do! I am sooo scared to have to go threw "another" surgery and all that. I have read that ALOT of you have had more than one surgery- Why? wasnt this sapossed to make us all better? That is what I was told and there would be NO LIMITATIONS! Has ANY body else out there still having headaches? Is there anyone out there with a good story after getting your shunt? PLEASE write to me for I am soooo worried that my life will be like this forever- Will it? or is it just because my shunt is sooo new??? I cant take it and its REALLY taking a tool on my fiancee and the people around me but especially me...I am getting REALLY depressed- I am only 36 years old and am planning a wedding and a family someday soon but how can you plan anything when you never know how you'll be feeling? aHHH I REALLY NEED PRAYERS! ALL I WANT IS TO FEEL BETTER for longer than a couple of days...PLEASE write and tell me your stories even if they ar bad ones. I am glad to of found people who are going threw what I am and feel what I feel

Please send me your stories-I Thankyou*

My son was shunted at 6 months old( spina bifida) he still has the same shunt. Only one lengthining revision. He has had none of the problems described. So it is possible to be pain free! I am so sorry you are going through this. Everything that could go right, has gone right, and at 29 he is in great health(except some extra weight). I will say though, he has had lots of prayer since he was born. I believe it has been his covering over his health. I will add you to my prayer list.
Health and healing in Jesus name! Linda
I have a prayer email list, but am unable to list it until I have 10 posts....perhaps later.

candlelight · 06-21-2012, 05:23 PM

Please don't be sad. I am sorry to hear you are in pain. I get severe headaches that the doctor says cannot be helped but I could not imagine what your stomach pains are like. I have had hydrocephalus since birth, the 1st VP shunt was put in at 6 weeks old. I grew up with it being a fact of life. I have never driven so I don't miss it. You are having to learn to live without privileges you have enjoyed for years on top of having surgeries, pain, and dealing with the paperwork of disability and medical care. I am also new on this site but from what I have read we have now found a wonderful support team. Friendship can make life easier even if it can't stop the physical pain. Don't give up. There is a reason for you pain, the doctors just aren't finding it yet.

Quote:

Originally Posted by glittergirl

Hello everyone

I am new on here and sooooooooo Happy to of found this site. I have had a vpshunt put in on Aug of 2008. it has been about 6 months since I have had this shunt and dont get me wrong , my pressure problem is all gone BUT, I have had soooo many problems since surgery. It took me a long time to recover for I had sooo much pressure in my head that it was the most my Brain Surgen has EVER seen! NO wonder why I was REALLY sick for 4 years- I lost a little bit of my vision ( well its not the same) because of all the pressure on my optic nerve. It's only been 6 months almost 7 and I feel that I am FINALLY getting back to normal, EXCEPT of all the HORRIBLE odd pains I have been having since surgery. It started about 2 months after surgery...I started to get this HORRIBLE MOST HORRIBLE abdominal pain- I have been threw EVERY test MRI/Cat Scan- ETC. and NO ONE found any problem with me or my shunt. So ok...what do I do? It got sooo bad at times I could'nt even walk-everyone said it was NOT from my shunt blah blah blah...I found this site yesterday and read atleast 5 stories of people that has had the SAME abdominal pain and EVERYTHING just like me....OMG Thankyou I'm not crazy-LOL.
So time has gone by and I have had that belly pain happen atleast 6 different times to me and the longest that it lasted was from the 28th of December all the way to the 1st of February (this year) yeah, HORRIBLE

then for 4 days I was great then out of the clear blue I felt like I was hit by a bus, and got this most HORRIBLE headache that I have EVER had- and believe me I have had CONSTANT headaches REALLY bad headaches for over 4 years straight! This one was almost the worst of them all! I ended up with some neck pain and a temp of 101. I went into the hospital about 3 days later-(cause you know how you hope it will just go away) well it didnt, it actually got worse

I went back into the hospital cause the first time they just thought it was a bad sinus problem- (yeah, I DONT have or EVER had sinus problems)but whatever...and the second time they thought -well didnt know what to think-they called my brain surgen and the next day I was to go get a shunt tap- so I did . It was crystal clear!!! but, I got a phonecall at 8am the next morning saying that my shunt is infected and I needed to go in and talk with the Dr. > OMG I cried for 2 days for I am STILL recovering how can this be? My hair is just starting to grow out etc

I thought I was out of the "infection period". ??? Anyways, I was in the hospital for 4 days they did test after test took all kinds of blood /catscan/MRI/ and so on....Here, NOTHING grew in my blood cultures or anything I stopped having a temp and just started to feel great..They said that my spinal fluid must have just had some bacteria on it from the skin or something? And I still had a bit of the neck pain with the headache but NOTHING like I had felt that week. I REALLY felt wonderful! So I got sent home on Valentines Day morning- I actually got cleaned up and went out for the whole day I felt so good! I even got engaged that night

but anyways, a whole week went by and all was the best I have EVER felt since ,well, since I'd say I felt in 5 years...Then the beginning of this week I woke up and was like oh no...and the hardcore headache was back with the temp and neck pain! so I went into the hospital again the next day...Of course when it came to my temp it was normal(Thankgod) they took my blood and that was it! they said my blood was fine- my white blood cells a little up (just like before) nothing changed. so NO signs of infection or anything so they sent me home. It has been going on 5 maybe 6 days now and the headache are still here with body aches (Flu feeling) with no temp. I go into my Brain surgens office this Thursday-I am sure he's going to want to do another brain tap

Ok...so, I dont understand? I thought I was going to feel better and FINALLY back to normal and live a great healthy life??? Why have I been having sooo many problems since this shunt has been put in me? This is NO WAY to live a life!!! I am sooo mad and sooooo frusterated that i dont know what to do! I am sooo scared to have to go threw "another" surgery and all that. I have read that ALOT of you have had more than one surgery- Why? wasnt this sapossed to make us all better? That is what I was told and there would be NO LIMITATIONS! Has ANY body else out there still having headaches? Is there anyone out there with a good story after getting your shunt? PLEASE write to me for I am soooo worried that my life will be like this forever- Will it? or is it just because my shunt is sooo new??? I cant take it and its REALLY taking a tool on my fiancee and the people around me but especially me...I am getting REALLY depressed- I am only 36 years old and am planning a wedding and a family someday soon but how can you plan anything when you never know how you'll be feeling? aHHH I REALLY NEED PRAYERS! ALL I WANT IS TO FEEL BETTER for longer than a couple of days...PLEASE write and tell me your stories even if they ar bad ones. I am glad to of found people who are going threw what I am and feel what I feel

Please send me your stories-I Thankyou*

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