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Old 09-21-2006, 11:27 PM #11
WmM3 WmM3 is offline
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Default I know i have some storm/weather shunt reactions

Forgive me if anything I post in this reply repeats information from others. For several years I have noticed that my HA activity worsens each fall season as early as August lasting until late november. it also seems to follow barometric pressures both high and low seem to trigger HA activity.

In addition: Last summer on the 4th of July my programmable shunt was actually scrambled when a lighten strike came down very near me. I was not struck directly but the ground strike was so close that it fried the transformers and surrounded me and others near me in a blinding white/yellow flash of light that was simultaneous with the thunder clap. It actaully moved my setting, jamming it between 2 settings. So most assuredly I do know that weather force can have some affect on our shunts; the only question is how much.

BTW--luckily the shunt was able to be reset without replacement though at first it looked like a surgery situation.
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Old 09-22-2006, 06:54 AM #12
MegNJaxMom MegNJaxMom is offline
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WOW! A lightening strike that close to you.... I would have been petrified! That is interesting though, something I had NEVER thought of!
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Old 09-22-2006, 08:49 AM #13
KathiDG KathiDG is offline
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Quote:
Originally Posted by WmM3 View Post
Forgive me if anything I post in this reply repeats information from others. For several years I have noticed that my HA activity worsens each fall season as early as August lasting until late november. it also seems to follow barometric pressures both high and low seem to trigger HA activity.

In addition: Last summer on the 4th of July my programmable shunt was actually scrambled when a lighten strike came down very near me. I was not struck directly but the ground strike was so close that it fried the transformers and surrounded me and others near me in a blinding white/yellow flash of light that was simultaneous with the thunder clap. It actaully moved my setting, jamming it between 2 settings. So most assuredly I do know that weather force can have some affect on our shunts; the only question is how much.

BTW--luckily the shunt was able to be reset without replacement though at first it looked like a surgery situation.
Wow...that's crazy. I just had a programmable put in August 18th. Medtronic Strata. Before now, I never noticed any kind of headache with weather changes, I just had headaches ALL the time. Now, I have practically no headaches, but I do notice I start feeling it some with storms that come in...I know that's all it is because as soon as it passes, I get better. Rather annoying, but as long as it's not an everyday occurance...

Anyone have any headache/shunt issues with SNOWSTORMS? I'm from Wisconsin and kind of leary about the winter coming....
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Old 09-22-2006, 09:19 AM #14
Jennifer Jennifer is offline
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Hey Gavin's mom, I think they maybe normal headaches because I got one at work one day, and told them that I had a shunt and they gave me an extra break and I sat down for a little bit and then it went away. I am 22yrs old and with him being young I might consider calling the ns just to be on the safe side. Anything I can give you advice on let me know.
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Old 10-24-2006, 12:12 PM #15
Gavin Gavin is offline
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Default update~*~*

Thank you all for your advice, I swear sometimes I feel like my brain is not big enough to make these decisions! All the emotions get in the way... I wish I had the Hydro!!
After a week or so, I did call the NS. He invited us to visit the ER, I declined, knowing how miserable that is, and I felt certain this was not really an emergency! I just wanted to see him. So, a week or so later, he finally set us up with a Ct scan. Well, about 3 weeks and several irate phone calls later, he finally got in touch with me to comment on the scan. And then, he didn't even have any previous scans on hand to compare with! OMG, I was so PO'd. He then suggested I should just get another done, and bring it to an appointment. Grrr! At this point, about a month has gone by, and the headaches (I am now calling them migraines!) have decreased to about 1 a week. So, I decided to skip the NS, and make an appt with a highly reccomended neurologist in Manhattan (I live in NY). That will be on Nov 7th, I hope he can tell me a good NS to see! I am so done with our current guy, he's such a you know what.
Gavin is actually home from school today, it's cloudy and he woke up at about 5am!! to watch movies! I am in the process of gathering all records, scans, etc (I am such a bad record keeper, I am sure I only have half his scans!). I do have a copy of the most recent scan, and from what I can see (as if I were a neurologist!) his ventricles are alot smaller than they used to be. They used to be pretty big, even when he was just fine. So now, I am beginning to worry about overdrainage, ugh!
Sometimes I wish someone else (like DH! ~yeah right!) could handle the details and let me just concentrate on worrying!!!
__________________
Jen~ Mommy of 4 angels, 3 with feet, 1 with wings:

Lillian Victoria (Lila)- 7/8/00- 10 days NICU for GBS RDS

Triplets~ 1/15/03 at 28w5d (due to GBS sepsis)

Gavin Michael 3lb2oz -identical- 51 days NICU
^Dylan Scott^ 3lb4oz -identical-d. 2/4/03
Hayden James 2lb12oz -fraternal-54 days NICU


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Old 10-15-2007, 12:19 AM #16
RACHEL SHMUEL RACHEL SHMUEL is offline
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Quote:
Originally Posted by Gavin View Post
Hi!
My son is Gavin, shunted for hydrocephalus at 1 week old due to IVHs, has been getting occasional headaches (maybe 5 or 6 since he turned three), I think I am noticing they happen when we have storms passing through. Sometimes he vomits. I don't 'feel' like there's any valve or clog problem, because he's unhappy for a few hours then just fine again. Is this normal? Could he have a migraine? Is it caused by the storm's low pressure? Should I call the NS? Does tylenol help? Any other med help?

Gavin's mom (Jen)
Hi Gavin's mom, my name is rachel and my son just turnd 4 he had his shunt placed when he was a week old and just for the past week he has been having migraines i calld his NS and they sent me to the ER but there were so many people that i didnt end up getting the CT done today but tommorow we are going for the CT and ill know more and maybe able to give u some information stay strong
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Old 10-22-2007, 08:08 PM #17
Ishmad23 Ishmad23 is offline
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Confused shunt question post operative

My husband had his 4th shunt replaced in August. He's had a shunt since he was 29 years old. He is now 58. The cause of his hydrocephalus is really unknown as it was latent. It may have been caused by a fall. The last shunt was 3 years ago and he bounced back to his regular self in about two months. This time, however, the shunt was replaced a bit higher than the last one on the right side of his head. His vision has improved but he can't really multitask so he can't go back to his high school Math teaching job yet, he also has been experiencing a numb feeling on the left side of his body: the shoulder, arm, thigh, chest and neck. He doesn't feel any pain. Just dull and weak numbness. It hasn't gotten any better as time goes by, it seems to stay the same or become worse. Has anybody experienced any such symptons? If so, what can he do about his numbness? His doctor said that it may be due to brain injury and to be patient. He also suggested physical therapy if it doesn't get any better in a few months. He just doesn't like the feeling. Is this normal? Please advise.
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Old 08-04-2009, 10:06 AM #18
GINIRAE GINIRAE is offline
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Confused Need help!

Hi, my name is Ginger. My husband had a car accident in 2004 which busted his head open. He started stuttering, having severe headaches, ringing in the ears and confusment. This was over a 3 year period so I kept making excuses why he was doing these things (he was tired, excited, stressed etc.)
Finally it got so bad that I made him go to the doctor in 2007. Turns out he had hydrocephlus and needed a shunt. So far, this shunt doesn't seem to be working. He is still having all these same symptoms, some are much worse and he has totally lost his short term memory. Does anyone else suffer with these symptoms. I wonder that he went so long with this being untreated that maybe it caused permanant damage. The NS we are dealing with is not giving us any answers. They've took away my husband's drivers license due to seizures. We had to switch doctor's just to be able to get another CT scan. He hasn't had one in a year 1/2. (not since 1 month after the surgery) Aren't you supposed to have one about every 6 months? Can anyone help us. We are desparate for someone to understand what we are going through. Some of the doctors we have seen, treat us as though we're crazy.
~Ginirae
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Old 08-04-2009, 01:34 PM #19
glittergirl glittergirl is offline
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Default me too!

WOW! I have had a vpshunt for exactly 1 year ago today...EVERYTIME the weather changed esp. storms I get REALLY bad Headaches as well! When the weather is beautiful out & sunny I feel great! I have mentioned this to my NS but nothing was said? I actually was looked at like I was crazy I believe that weather DOES have something to do with it-Almost like a arthritis thing?But honestly, as I said it has been a year ago 2day & i have had soooooo many headaches since this shunt was put in???? I am currently thinking of undergoing another surgery to just take out the cyst I have-So i would hopefully have NO shunt again ! For its a REAL Pain in the butt having a shunt inside you for the rest of your life goodluck with your son-i hope you find answers 7 if you do on this PLEASE let me know


Quote:
Originally Posted by Gavin View Post
Hi!
My son is Gavin, shunted for hydrocephalus at 1 week old due to IVHs, has been getting occasional headaches (maybe 5 or 6 since he turned three), I think I am noticing they happen when we have storms passing through. Sometimes he vomits. I don't 'feel' like there's any valve or clog problem, because he's unhappy for a few hours then just fine again. Is this normal? Could he have a migraine? Is it caused by the storm's low pressure? Should I call the NS? Does tylenol help? Any other med help?

Gavin's mom (Jen)
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Old 08-05-2009, 02:30 PM #20
Rachel Adams Rachel Adams is offline
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Default i know what u mean

hey Gavins mom
my name is Rachel and i know what your son is going through and no doctors will comment on what he is facingbecause they do not know. if it is not in their books they don't know.
anyway YES i belive teh weather does have an effect on the shut. I get really bad headaches and or my insion hurts when the weather changes. I have a neice that has had a shunt since 1 week old and her mom says she seems to be more fussy with weather changes too.
I have dealt with shunt problem since 1989 so if I can help you out in any way let me know
rachel
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