My son has an enlarged ventricle in his head, it was discovered when he was 9 years old ( he's 22 now ) when he had a large fit and a stroke. Recently he's been sufferering sever headaches, nose bleeds , dizziness. He went to see his GP who did various tests on him, he has refered him back to the neurologist and wants an MRI scan done asap. One side of my sons face has hardly any feeling in it and also on the same side, substatancial hearing loss and weakness. The weakness has been there since he was 9 but is considerably worse now. His GP said if it has grown they may have to try and remove it, very worrying as some of the symptoms are very new.

Hi Sharyn!

I am 28 yo woman experiencing the same problems as your partner. I have gone on a 5 year journey of being diagnosed with TMJ, chronic headaches, sent to a PT and orthodontist to correct my TMJ (which is helping with the headaches due to teeth grinding). still felt generally foggy, weak, slow cognition and clumsiness as well as suffering from idiopathic anxiety since young adulthood. Fast forward to May where I had a syncope episode that was brushed off as dehydration. My symptoms intensified where I insisted on finding a new PCP that would order an MRI and found the enlarged ventricles. Went to a neuro who ordered a field of vision test at an opthalmologist to determine if there was any ICP releasing through optic nerves (hence pain behind your partner's eyes and vision issues). The only vision issues i have had were after my passing out which included double vision and weakness. I have suffered from neck pain and shoulder pain for years instead which I was told is caused by the TMJ/teeth grinding. So, I was not surprised to hear my FOV test is normal. The neuro says I am not in need of any further treatment at this time due to the results but the symptoms are driving me crazy. ANYWAY, if there is no obvious sign of ICP, it could be releasing into the optical areas - so see if your PCP will order a field of vision test and the pressure could be hanging out there, giving you proof of ICP shifting elsewhere if that makes sense. BE FORCEFUL with your dr's. DON'T let them brush your partner off. SOMETHING IS WRONG. and if they won't help, go seek another opinion. I am looking for other neuros now, as mine won't even look at xrays ordered by a chiro which show obvious neuro-cranial weakness in my cervical spine, ridden with arthritis, disk disease and cervical stenosis. The cervical spine is also an area of release for ICP from what i have read - so I am trying to find a neuro in the states to take this more seriously. GOOD LUCK.