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Old 06-12-2009, 11:07 PM #3
Melissa21 Melissa21 is offline
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Join Date: Jan 2007
Posts: 23
15 yr Member
Melissa21 Melissa21 is offline
Junior Member
 
Join Date: Jan 2007
Posts: 23
15 yr Member
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Hey! Umm, yeah, about the problems breathing thing??? Well, the neurosurgeon I had before the one I have now was horrible with making me feel like I was making things up(he was one of those who go by "well if the CT Scan doesn't show a problem, then there isn't one."), so now (in response to how he treated me, even though I don't have him anymore), I'm really bad about convincing myself that I'm imagining symptoms. I was having problems breathing(what I didn't know was that my lung was partially collapsed) but convinced myself that it was just my imagination. I felt like I was drowning whenever I was lying down and had started sleeping at an incline. I didn't even tell anyone about that until after my surgery when I found out what shape my lungs were in.

I haven't had any pain(yet and hopefully won't, but I've only had it like 2 weeks) but I keep having the feeling that my heart will beat a little faster for a few beats or something. Its weird and really hard to explain. I just wanted to know it wasn't my imagination and that your heart can act up a little with this thing! Makes me feel better knowing that I'm not the only feeling something going on.

Oh, and about the fluid build up my neuro said that it backing up from the heart isn't an issue anymore because its dispersed through out the body.

OMG!!! You had a buzzing valve too???? I swear I think my neuro thought I was losing it!!!! I had that a few years ago! My mom heard it and so did my little brother which made me feel lots better knowing it wasn't just me! It eventually got less frequent and now it might do it every once in a while, but not often. My neuro said he had never heard of it either. And of course it wouldn't do it around him, which is always how it goes!!!

Hey, I don't mind long replies at all!!!(obviously I'm just as bad about writing them!) I've been scrambling trying to find people with VA shunts talk to cause it always seems better finding things out from those who actually have them rather than a doctor who is just going off what hes heard from patients. Its definitely not every day I come across someone who has had a buzzing valve too! You're the first I've ever heard of having it besides me! Lol. Thanks for responding!!! ~Melissa~
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