Hi,

I'm just posting this because it REALLY annoyes me. I've got hydrocephalus, spent most of my life in and out of hospital, had about 36 replacements and have still managed to gain a decent honors degree in IT and am about to do my post-grad...

now, enough about me, but what is getting my goat is ignorant people....I've been called "weird", "strange"; "idiotic" and get dismissed having nothing wrong with me, on a few occasions because of my memory, some times my speech and some randomness which is certainly associated with the condition.

I always mention to them that I, like many others are literally "hanging by a thread"...well slightly thicker, and that without that tubing, I would probably die or spend the rest of my short life virtually as a vegetable (as I am one of those who ALWAYS blocks, and my ICP build-up is suprisingly rapid....and nope, an ETV is out of the question cus of my slit ventricles)....it REALLY, really upsets me...does anyone else here have the same problem, ok, thanks to medical science I AM alive, but also thanks to medical science I get lot of disability discrimination

I sometimes get annoyed by my local charity as well, taking it for granted that Hydrocephalus MUST accompany Spina Bifida and that on it's own it's nothing really as it's "hidden"...I have nothing against people with Spina Bifida, but I've fundraised for them and random people have come up nd said "why doesnt Hydro have it's own charity, this stuff's just for spina bifida"...you see what I mean?.

Sorry just venting my spleen, but it REALLY iritates me!!.

Daz