Hello, im so sorry to hear what your daughter has been through, must be dreadful!!
I had my shunt removed on the 19th june, placed with an external shunt and then on 22nd i had a first try craniotomy and continuous fenestration of the cyst after so many shunt problems since last September.
3 weeks later, the fenestration failed and had an external drain put back in, 6days later i had my shunt put back in.

I must say my hospital (great ormond street) are absolutely fantastic when it comes to getting things sorted as soon as i show any shunt malfunction symptoms, my scans have NEVER showed up anything, even when comatose with VERY high pressure. Ive never had to wait when ive showed acute symptoms like extreme headaches/vomiting/light sensitivity etc, everything always been done on the spot.

The pain you mentioned after touching your daughters neck, i say, is perfectly normal. I know after my shunt revision I was very tender down my neck, its due to the catheter being threaded under the skin, I was very tender for days. I hope that reassures you and i sincerely hope your daughter feels much better real soon