[LizaJane]

Hi,

I usually post in the peripheral neuropathy forum. I had lyme disease and ehrlichiosis diagnosed in 2009, and was treated with a year of antibiotic and then herbs for bartonella.

I'm now getting IVIG, and I really think it is helping a lot.

Just wanted that up here, as something people can fight for. There is one good study where everyone with pn improved.

[heb1212]

Originally Posted by LizaJane

Hi,

I usually post in the peripheral neuropathy forum. I had lyme disease and ehrlichiosis diagnosed in 2009, and was treated with a year of antibiotic and then herbs for bartonella.

I'm now getting IVIG, and I really think it is helping a lot.

Just wanted that up here, as something people can fight for. There is one good study where everyone with pn improved.

LizaJane... I noticed from reading many of your posts that you had neuropathy for a looong time before you were finally diagnosed with Lyme. Did you ever test negative before becoming positive? Did you continually persist for retesting? Many, Many thanks... and so glad that after all these years you are being blessed with good results. You deserve it!!!

[LizaJane]

Yes, I had 6 negative tests before I had a positive. I had stopped making IgG antibodies, because of the lyme and perhaps because of one of the co-infections, but I tested postive for IgM and met CDC criteria using Igenix Labs. I think it's important that people be tested for co-infections. This might help their doctors make the lyme diagnosis.

Originally Posted by heb1212

LizaJane... I noticed from reading many of your posts that you had neuropathy for a looong time before you were finally diagnosed with Lyme. Did you ever test negative before becoming positive? Did you continually persist for retesting? Many, Many thanks... and so glad that after all these years you are being blessed with good results. You deserve it!!!